The power and pitfalls of omics part 2: epigenomics, transcriptomics and ME/CFS
Simon McGrath concludes his blog about the remarkable Prof George Davey Smith's smart ideas for understanding diseases, which may soon be applied to ME/CFS.
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Treatment protocols to ask my doctor to try

Discussion in 'General Treatment' started by scottmn, Jul 10, 2012.

  1. scottmn

    scottmn

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    Like many, I am sick & tired of being sick & tired!

    I've been ill since 2001 after contracting mononucleosis and have been treated mainly with medications, which their side effects have caused more problems, and yes you guess it, more prescriptions. I would be very happy to feel even the slightest bit better than currently.

    I have an appointment to see my new GP doctor this 7/20/12. So far, she's very compassionate and takes the time to go over things with me, but she has not suggested any new or treatment protocols. My question is: What are some (affordable, as I'm on SSDI) test/treatments and/or prescriptions that have shown some positive effects on CFS/ME patients.

    Thanks in advance.
     
  2. gu3vara

    gu3vara Senior Member

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    Low-dose naltrexone is cheap to try
     
  3. *GG*

    *GG* Senior Member

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    Vitamin D is also an immune modulator, and is hard to get toxic on, and you can have your Dr check your blood levels regularly.

    GG
     
  4. *GG*

    *GG* Senior Member

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    PS Get it naturally if you can, the sun.
     
  5. scottmn

    scottmn

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    Thanks for the replies. Yes my Vit D was low, so on 50,000 units 2x week.
     
  6. LisaGoddard

    LisaGoddard Senior Member

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    Where do you buy it from? Do you need a prescription?
    Thanks,
    Lisa
    ps I live in the UK so prescription would not be possible as they only prescribe antidepressants
     
  7. Sushi

    Sushi Senior Member Albuquerque

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    A lot of patients in the UK buy LDN on the internet (from India) because of this problem. I believe they buy tablets of Naltrexone, 50 mgs, dissolve it in the appropriate amount of distilled water and start taking it at somewhere between .5 mg and 1.5 mg (you have to be very careful to titrate the dose up very slowly--it took me 4 months to reach 4.5 mgs.)

    Normally it is by prescription, but patients report that the product from India works well, just a bit of a hassle to dissolve, measure etc. Note: the dissolved solution needs to be kept in the fridge in a brown glass bottle.

    Sushi
     
  8. peggy-sue

    peggy-sue

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  9. Scavo86

    Scavo86 Senior Member

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  10. taniaaust1

    taniaaust1 Senior Member

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    Unless you are trying to work with doctor on treating certain symptoms.. I'd give doctor a miss and go onto one of the methylation protocols if you havent tried that already (eg Fredds or Rich's methylation protocol). Dont underestimate the power of some supplements.
     
  11. xks201

    xks201 Senior Member

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    guanfacine, T3 replacement therapy, hydrocortisone replacement, sex hormone replacement. Possibly atenolol. Possibly adderall or wellbutrin and or lexapro.
     
  12. LisaGoddard

    LisaGoddard Senior Member

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    Thanks, that's very helpful to know!!
     

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