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Treatment and management of CFS/ME: all roads lead to Rome

Discussion in 'Latest ME/CFS Research' started by AndyPR, Jan 5, 2017.

  1. AndyPR

    AndyPR Senior Member

    Abstract - available here http://onlinelibrary.wiley.com/doi/10.1111/bph.13702/full
    Full paper here - http://sci-hub.cc/10.1111/bph.13702

    ETA all below.
    Part of the full papers comments on PACE
    Spelling mistakes are from the paper, other than that seems quite an accurate summarisation of PACE.
     
    Last edited: Jan 5, 2017
  2. Cheshire

    Cheshire Senior Member

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    Seems like Spain is not entirely submitted to the psychobabblers' nonsense. Do you know the people involved in this study @NexusOwl ?
     
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  3. trishrhymes

    trishrhymes Senior Member

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    Good to see another demolition of PACE.
     
  4. NexusOwl

    NexusOwl Spanish advocate

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    Interesting!

    I only know José Alegre there, it's a "expert" from Catalonia that has used almost every approach and has launched a lot of private clinics for CFS/ME and FM.
    He is like the maximum authority in Spain for CFS/ME. I'm happy to see they have decided to be rigurously updated in these topics. Will add this to the spanish situation thread and I'll try to contact them to congratulate and thank them for this well done job.

    Also I'll try to help spread this conclusion through my country. Thanks for tagging me, @Cheshire
     
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  5. CFS_for_19_years

    CFS_for_19_years Hoarder of biscuits

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    Hmmm, they missed the Addendum from the AHRQ that the value of GET and CBT have been downgraded, due to studies relying on Oxford criteria, and not using patients who have ME based on CCC or Fukuda.

    Page 32:
     
  6. NexusOwl

    NexusOwl Spanish advocate

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    I'll try to find someone that can point it out for them if I can't manage to talk to them myself.
     
  7. CFS_for_19_years

    CFS_for_19_years Hoarder of biscuits

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  8. Esther12

    Esther12 Senior Member

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    I've only just seen this. Good to have criticism of PACE in a pretty widely read journal.
     
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  9. Wolfiness

    Wolfiness Activity Level 0

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  10. Esther12

    Esther12 Senior Member

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    MEMum likes this.

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