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Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
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Treating bacterial and/or viral infections

Discussion in 'General Treatment' started by dmholmes, Feb 6, 2014.

  1. dmholmes

    dmholmes Senior Member

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    Who here has success treating bacterial and/or viral infections? Any suggestions for the following?
    • Campylobacter
    • Lyme (IgM P39)
    • EBV (VCA and Nuclear Antigen IgG)
    • Chlamydia pneumonia (IgG)
    • Mycoplasma pneumonia (IgG)
    • Cytomegalovirus (IgG)
     
  2. SOC

    SOC Moderator and Senior Member

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    My daughter and I both improved dramatically with Valtrex for EBV and Valcyte for HHV6. Valcyte should work as well or better for CMV.

    Since herpesvirus infections (EBV, HHV6, CMV, HSV, varicella zoster, etc) remain in the body forever (well, until we die, anyway ;)) there is always the chance that they will reactivate, especially when there is immune dysfunction. So while antiviral treatment for herpesviruses can knock the viruses back into latency, they do not cure the infection. For that reason, it may be necessary to repeat antiviral treatment periodically.

    I had about 6 months of azithromycin for C. pneumoniae which helped. It wasn't nearly as big for me as getting EBV and HHV6 under control, though.
     
    NK17, justy and heapsreal like this.
  3. dmholmes

    dmholmes Senior Member

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    Thanks @SOC! I did do a combined antibiotic for the C. pneumoniae a couple of years ago. I didn't see any results but it was for only about 3 months. Seems like fighting off the bacterial infections and getting the immune system working well is a good way to go.
     
    justy and SOC like this.
  4. dmholmes

    dmholmes Senior Member

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    Also, did you try anything else (Lysine, monolaurin, etc...) for the viral infections? If so, anything that worked?
     
  5. SOC

    SOC Moderator and Senior Member

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    It was the antivirals that worked. My daughter has low NK cell numbers and is taking inosine to try to improve her immune function in order to keep the viruses in latency.

    Serious infections needs serious medications, imo. Once they're back in latency, supplements might help keep them there.
     
    NK17 likes this.
  6. Martial

    Martial Senior Member

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    I have this protocol for lyme and co infection

    Bacteria killing- Prima Una De Gato (toa free cats claw, different version of Samento), Samento is just a s good though... Banderol, and Grape Fruit seed extract.

    Oxidative support- Resveratrol, CoQ10, Alpha Lipoic Acid, Neuro Protek, and Ribociene (glutathione pre cursor), may add PQQ later on

    Inflammation response- Lithium aspartate (for my messed up brain), TheraCurmin, Fermented fish cod oil, source naturals glucosamine chondroitin complex with msm

    General Immune system help- Ester C, Vitamin D, reishi mushroom, bio citrate magnesium, Jarrows B right complex.

    Methylation protocol- Methyl b12, ado b12, methyl folate, L Carnatine Fumarate.


    I also recently added some anti viral, anti bacterial, anti fungal essential oils using this protocol

    http://beyondessential.com/lyme-protocol-essential-oils/

    Also I don't know if it is a result of the supplements I take, or if I was deficient in something before but I also don't catch colds or flus anymore, even while being extremely ill from the lyme for over 6 months and what I would expect to be a compromised immune system.. Maybe the stuff I take creates an immune glandular response or something though.

    Anyways in my opinion this stuff is working great!
     
  7. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    I went from positive to negative on C. Pneum and my reactivated EBV went down considerably. This was on a protocol that included injected GcMAF, Nexavir and a low and slow methylation protocol. (there were other elements too)

    I am about to start treating Bartonella with antibiotics but expect that will take several years. :nervous:

    Sushi
     
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  8. Martial

    Martial Senior Member

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    @Sushi

    Wow that GcMAF looks so promising! I wish I could use it but I live in the U.S. :/ I will ask my LLMD to apply to get some though, good job on treating all those viruses!

    I posted a protocol I am using for lyme above, which Bartonella is a co infection of check it out!

    Also be sure to get something that can bust through the bio film for the abx!
     
  9. xrunner

    xrunner Senior Member

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    @dmholmes
    I did not treat Mycoplasma, EBV and Campylobacter. All others I treated. For Lyme I guess you mean Borrelia because the co-infections have their own requirements. I treated Borrelia and Cpn mainly with antibiotics (natural treatments did not work well) by using combinations effective against both. The IgG of CMV started to come down automatically as I treated the other infections. Like others I found GcMaf essential in my recovery. It reduced my Nagalase. If that's elevated, I personally do not think one can recover without first normalising it because it prevents the immune system from successfully attacking intracellular infections be they viral or bacterial.
    Other suggestions that should help speed up recovery.
    a) I did not know for sure which infections were driving my illness, some may have been opportunistic and there may have been others that just didn't show up. Therefore I treated systematically all possible types of infections: parasitic, bacterial and viral (yeast wasn't a problem) by using antimicrobials with the widest range of action. b) I tried and treated biofilm c) I started exercising as soon as I could but very slowly initially d) I used the simplified methylation protocol to support the detoxification of toxins e) I tried to reduce inflammation and increase blood flow to peripheral tissues as much as I could to make sure there were no hiding places for the microbes. f) I had amalgams so I had to remove and detox lead and mercury.
     
    Wayne and Blue like this.
  10. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Hi Martial,

    There is no problem getting GcMAF in the US. Lots of patients and doctors are using it. (I am also in the US) PM or open a chat for details.

    Sushi
     
  11. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    @Martial

    P.S. If you are thinking of GcMAF, it is important to do some testing before trying it as it is not suitable for those with certain conditions like high levels of inflammation. Also, Lyme patients seem to have a harder time tolerating it, but then I guess you have been treating Lyme for sometime? So that might not apply to you.

    It is good to have a doctor with GcMAF experience or one who is willing to be in contact with other doctors that do, as dosing is somewhat tricky and some of the literature recommends a dose that is too high for most ME/CFS patients. Prices also vary a great deal from source to source.

    Best,
    Sushi
     
    SOC likes this.
  12. Wayne

    Wayne Senior Member

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    Vitamin C is a potent viricide, bacteriacide, fungicide and parasiticide. IV Vitamin C and liposomal Vitamin C (reputed to be as or more effective than IV Vit. C) can be very effective against a wide variety of pathogens, including polio. Google Thomas Levy and Dr. Klenner for more info.
     
  13. dmholmes

    dmholmes Senior Member

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    Thanks for all the comments and suggestions!.
     
  14. Martial

    Martial Senior Member

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    Hmm might not want to jump into that too quick then.. I have very high inflammation from the lyme right now, especially in the brain which kind of worries me.... I have only been treating it for 6 months and had gotten bitten 2 or so years ago
     
  15. dmholmes

    dmholmes Senior Member

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    It is from Labcorp Western Blot. The only positive marker was Lyme IgM P39. Is that worth following up on? Burgdorferi, Bartonella, Babesia all negative.
     
  16. Martial

    Martial Senior Member

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    @dmholmes

    Lyme disease testing is not always 100% accurate all of the time, testing in general can be difficult as spirochetes can go in and out of remission, this will cause them to miss the antibodies.

    Just because you test negative for other co infection does not mean you do not have them for sure, the best way to find out is take a challenge test so that you draw infection out of the system.. Do this by taking a treatment plan of either pharmaceutical antibiotics, or potent herbal antibiotics,.. Once you get a herx kill off reaction or a flare in symptoms then re test and they will likely find exactly the anti bodies and co infections that are there.

    the good news about co infection killing treatments is that they all cover the whole list of co infection, this means regardless of what you may have they are all being treated regardless..
    Lyme disease co infections can include both viral components, and parasitic.

    *note that treatment has to include something that treats co infection, if you are not using something that targets specific co infections it will not show up.. Banderol, Cats Claw, Samento, and certain pharm antibiotics treat co infection as well, I do not know which specific pharm abx do though..

    Absolutely follow up with that! Did you ever do any viral panels? anything come up in significance? There are also a few other lyme co infections that you did not mention like ehrlichiosis, lone star fever, and the most dangerous for some the mycoplasma co infection.

    I would be very quick in treating lyme of any type as the longer you wait the more it gets into the system, complications, and longer treatment...

    Lyme with co infection can make you VERY sick, absolutely follow up!

    I am finding out more and more how many people with CFS or on this forum have lyme and never sought treatment..
    for a lot here lyme seems to be why so many are sick and possibly their recovery if they just treat the infection!

    Lyme disease is a whole body infection, it gets into every system of the body and hi jacks the immune system, you can bet if you have lyme and M.E. that you will not be able to fully treat the M.E. without clearing out the infection first..
     
    Last edited: Feb 9, 2014
    Blue likes this.
  17. dmholmes

    dmholmes Senior Member

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    @Martial thanks for the encouragement. I'm going to follow up with an LLMD. The other infections I tested positive for are listed at the beginning. The lab was fairly comprehensive NK, Ehrlichia, Candida, H. Pylori, RMSF, Trichinella all negative.
     
  18. xrunner

    xrunner Senior Member

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    Sorry I did not see this...Martial has already answered. Also for an idea of the role of testing in diagnosing Borrelia and co-infections it is worth reading Burrascano's guidelines and finding an LLMD who is experienced enough to make a clinical diagnosis.
     
  19. xrunner

    xrunner Senior Member

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    @Sushi, it should take weeks with the right protocol. It was easier and quicker than Borrelia which never goes away completely in any case. Good luck.
     
  20. dmholmes

    dmholmes Senior Member

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    Thanks. I have contacted a LLMD and waiting to hear back. Actually the doctor that diagnosed me with CFS is a LLMD, but we didn't talk about it at the time and I'm not sure what was tested then either.
     

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