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Graham McPhee spells out some of the cold, hard facts about the dismal state of ME research and politics, and has some suggestions as to what we can do about it ...
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Transcript - Dr. Jason's Webinar, April 14th

Discussion in 'Action Alerts and Advocacy' started by jspotila, Apr 19, 2010.

  1. gracenote

    gracenote All shall be well . . .

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    Santa Rosa, CA
    This is so great. Thank you jspotila and OTH. It is wonderful being able to quickly look for specific info. Now if my brain would only cooperate . . .
     
  2. Dolphin

    Dolphin Senior Member

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    SF-36 questions

    I haven't read this yet.
    But my guess is many people would benefit from filling in a SF-36 questionnaire to know what is being talked about.

    This can be done at:
    http://www.sf-36.org/demos/SF-36.html
    or
    http://www.qualitymetric.com/demos/sf-36.aspx

    If one goes to (near end of) https://www.fstrf.org/apps/cfmx/apps/actg/html/QOLForms/manualql601-2799.pdf one can see how they are scored. Except for the pain scale (and the composite scores which Lenny Jason may not talk about), once you know the questions, it is just a question of expanding them to fit 100 (in other words, getting a percentage). So the SF-36 physical functioning subscale is 10-30 (which is the same as 0-20) - so one just multiplies each score by five (if you are doing the 10-30 scale, subtract by 10 first). Anyway with the sample tests, they do the scoring for you.
     
  3. Dolphin

    Dolphin Senior Member

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    Little question

    Thanks again to Jenny and everyone involved in the transcripts. I love transcripts as I tend to want to make lots of notes if watching anything so it's much easier just to have a proper transcript.

    I also think the area of the definition is very important.

    One little question:

    Anyone know who he is referring to when he mention Gaines (or Gain's??). I listen again and it does sound like that. Maybe it is something obvious. I don't know much about exercise physiology.
     

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