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Training videos for English GP's on how to deal with CFS patients

Discussion in 'General ME/CFS News' started by Dolphin, Mar 26, 2010.

  1. Calathea

    Calathea Darkness therapy

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    Scotland
    Timing was more my issue with sleep, I have Non-24 Sleep-Wake Disorder so I was running on 25 hour days. I found that light therapy and darkness therapy work really well for me, so my sleep sorted itself out quite nicely. When I was coming off gabapentin, though, my sleep was horrendous for months.

    I don't sleep dead on 8 hours every night, but it's usually 7-10.
     
  2. Leopardtail

    Leopardtail Senior Member

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    England
    I have some fantastic 'blackout blinds', get a warm bath before bed every night, and a light-box on a timer. It produces some improvement. For me all that works is Melatonin, I don't seem to produce enough of it. When I sleep too long it deepens and shortens the sleep. When I sleep too little it lengthens the sleep.
     
  3. Calathea

    Calathea Darkness therapy

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    Scotland
    I'm not talking about blackout blinds, though those are good, but about darkness therapy. It means that I get no exposure to blue light for 3 hours before bed (orange glasses and lighting). That way my body produces its own melatonin. You can Google it.
     
  4. Leopardtail

    Leopardtail Senior Member

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    England
    Thanks for the tip re the glasses - I will look into that.

    I am very interested in Melatonin production in ME (as part of wider biochemistry). Would you mind telling me what your fatigue level was on this scale before and after sleep problems? It would be of great help in a research project I am putting together :)

    BTW my wake up light is a 'plant light' combined with a genuine full spectrum fluorescent tube producing very large amounts of red and blue light and I found that made a huge difference. It is a bit of shock to the system when it comes on (in winter) though.
     
  5. Calathea

    Calathea Darkness therapy

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    Scotland
    I wrote about it in quite a lot of detail at http://insearchofmornings.wordpress.com/ a few years ago. I can't remember where I was on the scale, it was years ago, but improving my sleep definitely improved my health. Full-spectrum lighting isn't actually helpful, by the way. It's blue that's relevant. I'm about tired to go into it now, but it's on the blog.
     

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