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Training videos for English GP's on how to deal with CFS patients

Discussion in 'General ME/CFS News' started by Dolphin, Mar 26, 2010.

  1. Dolphin

    Dolphin Senior Member

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    Dr. Clare Gerada (the doctor in this clip and Simon Wessely's wife) has just been elected as the next chair of the Royal College of GPs (RCGP).
    http://www.pulsetoday.co.uk/story.asp?sectioncode=35&storycode=4125612&c=2
     
  2. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    Christ!!!! I'm suprised she and Trudie Chalder haven't been awarded medals for this video from the Royal College of Physicians as Simon Wessely has (from RCP) for his 'work' in "CFS".
     
  3. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    Polly- Thanks for posting this on your FB. It really needs to be exposed.

    Actually they do mention 'neuro problems'- by saying there aren't any! They say there is no nerve pathology in 'CFS'!!!
     
  4. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    True dat!!!!!!!!!!!
     
  5. ukme

    ukme Senior Member

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    Dr Chalder says she gets 70% of her patients better plus she thinks people should be dissuaded from contacting organisations like the ME association and asking for lots of tests - merely keeping a diary, sleeping 8 hours a day and a bit of CBT will do the trick. Is she for real?

    The whole tone of this video is deeply patronising and the pair of them clearly have no idea what they're dealing with.
     
  6. valia

    valia Senior Member

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    I believe they know exactly what they are dealing with, they just dont want anyone else to know :Retro mad:
     
    Min likes this.
  7. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    I'm afraid Valia is right. We have some very crafty foes. :Retro mad:
     
  8. fred

    fred The game is afoot

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    No, instead, she's just been made Chair of the Royal College of GPs. See separate thread in this forum for news of the glorious appointment.
     
  9. justy

    justy Senior Member

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    i have only just stumbled on this thread, and watched the first 5 minutes......i cant watch anymore. It actually made me cry. And thats the 2nd time today i have had to shed tears over the treatment we get from our GPs in the uk. I couldnt recognise the illness that man had at all. After all he was working and studying etc. Whilst i am completely housebound . I would be overjoyed if 8 hours sleep a night made me better! Infact i would be overjoyed if it was all just because i couldnt manage my time properly.

    This crap feels like the worst kind of abuse. Its no wonder i have had no support whatsoever from my doctor. I though M.E was supposed to be a recognised neurological disease with proven immune abnormalities.
    I pray that the XMRV research can finally prove them wrong. Can we not sue someone for this shit? i am so fed up with being mistreated by the medical proffession and not getting the care i need.
     
  10. Desdinova

    Desdinova Senior Member

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    I saw these two videos over a year ago I believe (If my memory serves me right that is) on Utube very insulting and very sad to say the very least. No one doubts that psychosomatic disorder exists and does happen. But for the Worlds Medical community to still say something like CFS is a psychiatric disorder is an unbelievable outrage. Just outrageously as it was and still widely is done with Fibromyalgia and IBS two more so called 'waste basket disorders.' For them to say that things as widely commonplace as these with the number of people suffering from them are psychosomatic disorders is to unspokenly imply mass hysteria amounts to a sizeable portion of the world’s population. And that is more than outrageous it’s criminal IMO.
     
  11. Enid

    Enid Senior Member

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    We know the claptrap here !
     
  12. Frank

    Frank Senior Member

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  13. Enid

    Enid Senior Member

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    Can't view anymore. This has to be out of the Stone Age. The big switch off was how to MANAGE patients - thought Medicine was about trying to help/heal which is totally absent.
     
  14. Dolphin

    Dolphin Senior Member

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    Vincent Deary is giving a training day soon

    One of the "stars" of this video, Vincent Deary, is giving two training days soon:

    http://www.manchestercfsme.nhs.uk/pod/conferenceandtraining/

     
  15. flamingo

    flamingo

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    Ive just watched the whole thing and can honestly say, I hope every single one of them ends up suffering from ME. And I won't feel bad that they are suffering, it will just feel like justice that they have to suffer both the debilitating physical and mental symptoms that we all struggle with, and at the hands of the doctors following their ridiculous 'treatment' plans. Hmmm I do wonder if psychiatrists have the power to think themselves better, as they seem to think we do?

    And believe me, I wouldn't have spent the last few months stuck at home in pain and bored out of my head if it was supposedly that easy to modify my thoughts and behaviours through CBT and get 'better'.
     
  16. meandthecat

    meandthecat

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    Though the official line is now, Yes, we believe this is a real disease and that GP's should develop treatment plans etc there is no evidence of change in my neck of the woods. The attitudes so clearly displayed in these videos have blinded a generation of Doctors to the reality we experience. I doubt that they can overcome such deep-seated prejudice and hope lies with the newly trained, though with the vicious treatment the BMA hands out to dissenters such as Dr Myhill, it's clear they haven't given up yet.

    My most recent GP was the best yet and took me seriously as long as I didn't mention CFS, it was an unspoken agreement. a very big elephant in a very small room. He focused on immediate symptoms and pushed the hospital when they sidelined me but the inability to look at the big picture devalued the results; and now he's left and the new young'un looks scared of his own shadow.

    This seems to be the reality of centralised socialised medicine in the UK and these videos as much as they are the product of an ideologically motivated clique with undue power over a section of the health system illustrate the rot beneath the surface.
    A lack of transparency, a one size fits all mentality and too much power in the hands of the consultants which allows them to dominate new doctors.

    My last encounter with a consultant illustrated the private/public face of the NHS, a fault line that runs through the whole system. I was the last in the clinic which was running late, a cancer clinic; I was offered NHS diagnostic treatment and subtly more expensive private treatment which I didn't take up and was then hustled out as he was late for his private clinic. If you begin a course of treatment privately it can be hard to get back into the state system which of course I have already paid for through my N.I contributions.

    These videos are so obviously pathetic and stupid why are they taken seriously by some of the most intelligent and best trained graduates we have?
     
  17. Leopardtail

    Leopardtail Senior Member

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    My goodness, I stopped drinking alcohol more than six years ago, I must be cured!
     
    maryb and justy like this.
  18. Calathea

    Calathea Darkness therapy

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    I have never drunk alcohol, keep a basic diary, and sleep 8 hours a night. Nope, still severely affected.
     
    Valentijn likes this.
  19. Min

    Min Senior Member

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    They continue to encourage the medical profession to abuse us whilst they determindly prevent biomedical research. The swift move to deny XMRV was very fishy, as is trying to put genuine researchers off by pretending they have death threats from patients.
     
  20. Leopardtail

    Leopardtail Senior Member

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    Am highly envious, I can sleep 72 hours in one burst (PEM) or for barely 5 hours in a whole day for weeks on end. My system just refuses to sleep.
     

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