Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Training Medical Specialists in Communication about MUPS: Patient Outcomes from a RCT

Discussion in 'Other Health News and Research' started by Dolphin, Apr 30, 2016.

  1. Dolphin

    Dolphin Senior Member

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    These sorts of interventions tend to annoy me as they usually involve things like graded activity.
    So I'm happy enough it didn't work out for them.


    http://www.ijpcm.org/index.php/IJPCM/article/view/490

     
    Last edited by a moderator: May 1, 2016
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  2. Bob

    Bob

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    I wonder if that issue would have been so prominent in the conclusion if the results had been positive?

    Sensible patients!
     
  3. Luther Blissett

    Luther Blissett Senior Member

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    They lost 85% of patients who were willing to answer a questionnaire during 6 months?

    Is this kind of drop within what we would expect to see? It seems steep to me, considering the patients agreed to be part of the research.
     
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  4. meandthecat

    meandthecat Senior Member

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    I wonder how the ME centres fare with their attempts to 'explain' the symptoms of sufferers? In my own experience the group that I was in shed 77% of participants by the 3rd week and I threw the follow-up questionnaires in the bin.

    Perhaps a more honest research topic would be..... How sick and desperate do you have to be to swallow B.S ?
     
  5. Esther12

    Esther12 Senior Member

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    Looks like this was done as part of a phd, available here:

    repub.eur.nl/pub/78687/150930_Weiland-Anne.pdf

    This paper from the same person uses the fact that training led to clinicians acting how the trainers wanted to claim:

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4575077/

    Never mind the fact that there was no evidence this actually benefited anyone.

    The thesis talk about blinded assessment of doctor's letter to patients being helpful to avoid problems with bias, but no mention of problems with bias in the patient's self-assessment of symtoms.

    This is the thesis conclusion:

    Great work.
     
  6. medfeb

    medfeb Senior Member

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    These kinds of studies drive me crazy because they are based on an unproven and unprovable hypothesis that all people with medically unexplained symptoms will respond to treatment in the same way. Its ridiculous to think that treatment response can be predicted based on the state of our current medical knowledge
     
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