A New Decade of ME Research: The 11th Invest in ME International ME Conference 2016
Mark Berry presents the first in a series of articles on the 11th Invest in ME International ME Conference in London ...
Discuss the article on the Forums.

Top Tiered CFS Physicians

Discussion in 'General ME/CFS News' started by jtimc7, Sep 13, 2011.

  1. jtimc7

    jtimc7

    Messages:
    2
    Likes:
    0
    I was in touch with Dr. Paul Cheney's office today. They mentioned that he is in the top 5 or 6 physicians who work in the area of CFS, world-wide.

    Might anyone have thoughts on who the other top level physicians dealing with CFS are?

    Thanks so much.

    Tim
     
  2. SickOfSickness

    SickOfSickness Senior Member

    Messages:
    2,309
    Likes:
    2,243
    US
    Derek Enlander
    Nancy Klimas
    Montoya I think.

    Jamie Deckoff-Jones just opened her clinic.
     
  3. Cort

    Cort Phoenix Rising Founder

    Lucinda Bateman
    Charles Lapp always seems to be doing drug trials
    Dan Peterson
     
  4. Francelle

    Francelle Senior Member

    Messages:
    444
    Likes:
    24
    Victoria, Australia
    Let's not be too provincial here - the experts are not all American you know! There is Sarah Myhill, Byron Hyde, Kenny De Meirlier to name just three others in the English speaking world. We need to be also aware that there are other Dr's who are in the non- English speaking world who tirelessly work for M.E. patients and may be just as skilled and experienced but less 'in our face' because of language/communication.
     
  5. jtimc7

    jtimc7

    Messages:
    2
    Likes:
    0
    Thanks everyone!
     
  6. usedtobeperkytina

    usedtobeperkytina Senior Member

    Messages:
    1,472
    Likes:
    498
    Clay, Alabama
    Don't forget

    Don't forget Komaroff and Rowe.

    Tina
     
  7. citybug

    citybug Senior Member

    Messages:
    522
    Likes:
    38
    NY
    Dr. Chia, Dr. Brewer?
     
  8. Gemini

    Gemini Senior Member

    Messages:
    654
    Likes:
    1,178
    Dr. Bell. And NY/NJ: Drs. Levine, Natelson, Oleske(Pediatric ME/CFS).
     
  9. leela

    leela Slow But Hopeful

    Messages:
    3,222
    Likes:
    7,233
    Couchland, USA
    Rosamund Vallings, Kenny De Meirleir, Byron Hyde
     
  10. ixchelkali

    ixchelkali Senior Member

    Messages:
    1,105
    Likes:
    274
    Long Beach, CA
    In New Zealand, Dr. Ros Vallings.
     
  11. allyann

    allyann Senior Member

    Messages:
    401
    Likes:
    749
    Melbourne Australia
    In Melbourne, Australia, Prof. Michael Oldmeadow
     
    Mary Poppins likes this.
  12. Nielk

    Nielk

    Messages:
    6,877
    Likes:
    10,615
    Does anyone know what treatment Jamie Deckoff-Jones uses in her clinic?
     
  13. SickOfSickness

    SickOfSickness Senior Member

    Messages:
    2,309
    Likes:
    2,243
    US
    Surely whatever she thinks is best for the patient given their test results and history, and based on what they can afford and are willing to try. Many times she has said something about that.
     
  14. chloe

    chloe

    Messages:
    26
    Likes:
    0
    California
    Deckoff-Jones has just started. Does not have years of experience like the others. Background is as an ER doc. Bonus is she's interested; limitations - she believes in aspects of treatment before they have been scientifically proven. So what if you're a patient who does not respond to one of her "beliefs"? It's problematic. But I would expect her general clinical skills to surpass some of the turkeys many of us have seen. I would give her a positive rating, but she does not rank up with the old timers of CFS.
     
  15. Gamboa

    Gamboa Senior Member

    Messages:
    258
    Likes:
    468
    Canada
    Dr. Alison Bested in Toronto is one of the few Canadian ME/CFS doctors. She co-authored the book "Hope and Help for CFS and Fibromylagia". Unfortunately she does not take new patients at her Toronto Office but you can get in to see her at a CFS clinic held on Wednesdays at The Woman's College Hospital. OHIP only allows for three visits here so after that you are on your own again (or back to your GP which is about the same thing in most cases). She also doesn't (or can't?) prescribe any of the drugs I see mentioned by the American patients.

    Gamboa
     
  16. Michael Dessin

    Michael Dessin Senior Member

    Messages:
    339
    Likes:
    15
    Ohio
    Alternative medicine practitioners who specialize in homeopathics, pleos, acupunture, balloon dilation, cranio..and other energy medicines have shown the best results..plus docs using ampligen or GcMAF
     
  17. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

    Messages:
    1,767
    Likes:
    347
    Southern USA
    I agree. I have found wonderful integrative doctors that have gotten my CFS doing great. It is not a problem at all now. POTS began after a surgery three years ago, so we are now working on that, very tricky.

    A good integrative MD knows supplements. They have a wide range of ways to help, lots of knowledge they work on through study, travel to conferences etc. Open minds.
     
  18. leela

    leela Slow But Hopeful

    Messages:
    3,222
    Likes:
    7,233
    Couchland, USA
    Yes, I will have to chime in with Mike and Sally. I replied with MD names above because that is what the thread-starter asked for--(sorry mine were repeats)--but as far as anyone can tell, even the most wholeheartedly sincere and deeply experienced MDs who have been focusing on ME have not exactly had throngs of people doing cartwheels of vigorous health out the door.

    Personally I see a D.O., an ND, a Doctor of TCM, and an acupuncurist, as I can afford. I have also seen a doctor of neurochiropractic, which is useful.

    I am not all better, mind you; but I feel the supplements, the homeopathics, the chinese herbs, the dietary focus, are all addressing the root cause, slowly, and are what has kept me from being totally bedbound and dependent in a darkened room. I am still mostly housebound and horizontal however.

    All this to say, few have found the way to be totally free from this neuroimmune weirdness. There are different approaches. I think it is a matter of finding what works for you, and going with whatever approach allows you to manage or tame the worst of the symptoms until
    you find an affective way to address the core malfunction.
     
  19. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

    Messages:
    1,767
    Likes:
    347
    Southern USA
    Yes, I went to a supposed "great CFS doc." It was not good at all. She knew much less than integrative MD's. I couldn't get out fast enough. You do just have to find the best you can.
     
  20. Gravy

    Gravy

    Messages:
    1
    Likes:
    0
    Deniliquin
    Hi Allyann,
    I'm new to this forum thingy, so be patient with me if i do something wrong:)

    I saw your post about prof michael oldmeadow and was wondering if you had some contact details for him? I have cfs/fm and I'm not real happy with my current Dr.

    Thanks
     

See more popular forum discussions.

Share This Page