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Today: Videocast of NIH Council Meeting to authorise major ME/CFS funding - Thursday 26 May 2pm EDT

Discussion in 'General ME/CFS News' started by Bob, May 24, 2016.

  1. Bob

    Bob

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    England (south coast)
    Today!
    Thursday 26th May 2016 - 2pm EDT (7pm London).

    Videocast of NINDS (NIH) Council Meeting to authorise major ME/CFS funding & research initiatives.


    Live video should be available here:
    https://videocast.nih.gov/

    The video will be archived and made available.

    Full agenda of meeting:
    http://www.ninds.nih.gov/find_people/nands/council_agenda_may_2016.htm

    ----------------------------------------

    The Future is Almost Here: NIH Proposal To Move ME/CFS Research Forward Unveiled on the 26th

    Cort Johnson
    http://www.healthrising.org/forums/...s-research-forward-unveiled-on-the-26th.4403/

    The Trans-NIH Working Group - a group of Institute representatives working on ME/CFS - will present their proposal to move chronic fatigue research forward during an open session of National Advisory Neurological Disorders and Stroke Council. You can watch it LIVE on May 26th at 2pm (I assume that's EST). (It will be archived as well.)

    Thursday, May 26th at 2pm
    https://videocast.nih.gov/

     
    Last edited: May 26, 2016
    waiting, Ritto, Sidereal and 15 others like this.
  2. shannah

    shannah Senior Member

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    Whew Hoo!!!

    (It's not April is it?)
     
    Izola and Jennifer J like this.
  3. duncan

    duncan Senior Member

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    Perhaps someone should remind Cort it's not chronic fatigue per se that we're interested in.

    If WE don't get it right, how can we demand anyone else to?
     
    justy, BurnA, Justin30 and 3 others like this.
  4. dreampop

    dreampop Senior Member

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    What's the minimum acceptable amount from the working group's proposal (given that its unlikely all of it will be accepted by the institutes)?

    Also, wasn't CFS moved into the Neurological Institute therefore eliminating the trans institute working group?
     
  5. charles shepherd

    charles shepherd Senior Member

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    Videocast scrutiny later today of major US federally-funded ME/CFS research initiative | 26 May 2016

    National Institute of Neurological Disorders and Stroke

    Agenda for meetings on Thursday 26th May and Friday 27th May:

    http://www.ninds.nih.gov/find_people/nands/council_agenda_may_2016.htm

    The particular item of interest in relation to ME/CFS is on Thursday 26th (7 PM UK time):

    2:00 p.m. VIII. Concept Clearance for Proposed Initiative ME/CFS Research =
    Consortium

    Dr. Vicky Whittemore, Program Director, Channels, Synapses & Circuits, =
    Cluster, NINDS

    The videocast website is: http://videocast.nih.gov/.=20

    The meeting on the 26th is open until 2:45;

    The 27th is closed.


    Dr Charles Shepherd
    Hon Medical Adviser MEA
     
    Last edited: May 26, 2016
  6. Kati

    Kati Patient in training

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    Just a reminder for everyone interested that there will be a videocast announcement tomorrow (today for most) at 2 PM EST. It should be interesting.
     
    shannah, mango, Bob and 1 other person like this.
  7. Sasha

    Sasha Fine, thank you

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    It looks like Vicky Whittemore is announcing some ME/CFS stuff - 7pm UK time, 2pm New York time.
     
    Comet, Valentijn, mango and 1 other person like this.
  8. Sasha

    Sasha Fine, thank you

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    @charles shepherd - I wonder if you or the mods would like to change the title of this thread to the one on your MEA page (below)? I think it would help draw attention to this. :)

    Videocast scrutiny later today of major US federally-funded ME/CFS research initiative | 26 May 2016
     
  9. Bob

    Bob

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    Last edited: May 26, 2016
    Comet, Theodore, shannah and 4 others like this.
  10. charles shepherd

    charles shepherd Senior Member

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    Sorted!
     
    Valentijn and Sasha like this.
  11. Sasha

    Sasha Fine, thank you

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    :thumbsup:
     
  12. Kina

    Kina

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    Please note there were two threads related to the Videocast so they have been merged.
     
    Valentijn, Scarecrow, ukxmrv and 3 others like this.
  13. Sasha

    Sasha Fine, thank you

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    Bump!

    This is on in three and a half hours.
     
    mango, Mary, Blue and 1 other person like this.
  14. Sasha

    Sasha Fine, thank you

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    Bump!

    This is on in just over half an hour.
     
    Kati likes this.
  15. LiveAgain

    LiveAgain Senior Member

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    I don't see anything about ME/CFS when clicking on that link. What do we do once we get onto the page?
     
  16. Kati

    Kati Patient in training

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    It starts in 10 minutes. Look for the NINDS webcast, it is a 2 days meeting and dr Whittemore's talk.(the first one on top)
     
    LiveAgain likes this.
  17. Nielk

    Nielk

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    Click on first item that says - National Advisory Neurological Disorders and Stroke (NANDS) Council - May 2016

    It's an ongoing meeting. 2 aclock they will be talking about ME/CFS.
     
    Valentijn, LiveAgain and Theodore like this.
  18. LiveAgain

    LiveAgain Senior Member

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  19. LiveAgain

    LiveAgain Senior Member

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    Oops and thank you @Kati too.. didn't see your response above NielK's.
     
  20. shannah

    shannah Senior Member

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    112 watching
     
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