Tocilizumab is amazing, anyone tried?

[gregh286]

Interesting, thanks.
Which probiotic? I can believe the pred helps but does sugar really affect the immune system that much?

Anything i benefit greatly from are tlr4 antagonists.
Glycine....oxymatrine....vit d. Amoxicillian also.

Equilibrant has good success in cfs. Did chia inadvertently stumble on real sucess of oxymatrine.......trl4 antagonist.....not viral issues at all.
Our old friend naltrexone (ldn)also pops up in wiki as tlr4 antagonist.

 

[cigana]

Anything i benefit greatly from are tlr4 antagonists.
Glycine....oxymatrine....vit d. Amoxicillian also.

Equilibrant has good success in cfs. Did chia inadvertently stumble on real sucess of oxymatrine.......trl4 antagonist.....not viral issues at all.
Our old friend naltrexone (ldn)also pops up in wiki as tlr4 antagonist.

Interesting. Vit D and oxymatrine have no effect on me. Doxycycline, supposedly one of the more powerful immune modulators, also has no effect. It's confusing.

 

[choochoo]

@Jesse2233 @cigana
I have just read this thread and find it very interesting. I have been to a specialist who worked with Carmen Scheibenbogen. But he didn't test for high interleukins. But a psychiatrist I had to visit because my doc told me so ("it might be a conversion disorder") said, I had to test for every antibody and interleukins - btw, the psychiatrist said that he is quite sure my condition has nothing to do with mental illness there are good ones out there!

So my question ist: Where did this go with the IL-8 levels? I found the blog https://forums.phoenixrising.me/index.php?entries/high-il-8-as-a-marker-for-cfs.1690/ being 3 years old...

Thank you!

Martin

Do you have a record of IL-6 levels from around this time?

 

[dreamydays]

see https://forums.phoenixrising.me/posts/2289500/ and https://forums.phoenixrising.me/posts/2289501/ and also think about sirolimus for high cytokines?

 

[dreamydays]

I had amoxicillin by IV in hospital and felt 40% remission but they would not let me leave illegally as they thought my muscle weakness was a clot and i was stuck in a stressful environment, I have had ME muscle weakness on and off for years. They would not give me form to reject further care form so I was illegally detained by the end I was so scared they had stopped a doctor seeing me on his round i started getting paranoid that they were going to do something like section me. I had a few hallucinations and it drained me, so i never got the chance to find out. have had 3g amox since but cant replicate even with uti

 

[Marylib]

It's been approved for actual treatment of SARS CoV 2, so if these people who do research put their heads together, we might get somewhere. Otherwise it's just more of the same: Imaging studies vs. Immunology vs biochemestry and epigenetics. IL-8 levels in ME/CFS. Meanwhile people are dying and sometimes by their own hand. I get very frustrated when healthy people argue with each other about which blind man is examining the same elephant. So no one gets my money until they can show me collaboration in academia, science and pharmacology. So far NCNED and Warren Tate at Otago University may be arguing, but at least they are collaborating. The US and UK are hopeless - but not Australia, New Zealand and the EU - in my opinion
https://www.frontiersin.org/articles/10.3389/fneur.2018.01033/full
https://pharmac.govt.nz/news-and-re...5q6oE9UcLGp0blyPYBj0s1lRSBc08TPLkgaT0D_9xrefY