Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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To those taking hydrocortisone: how much are you on?

Discussion in 'General Treatment' started by alice111, Nov 11, 2014.

  1. alice111

    alice111 Senior Member

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    Canada
    just wanted to get an idea of how much people are taking.
    The dose recommended seems to vary, and since us M.E -ers seem to be ultra sensitive I wanted to know if some people are taking tiny doses, or high doses?
    if you could please note the following:
    -your daily dose
    -what time you take it at
    -how long you have been taking it for
    and of course if you are up for it/ have the time how it has helped or hindered.

    feel free to post if you are taking a cortef equivalent as well such as prednisone or dex.
    thanks so much! :)
     
  2. *GG*

    *GG* Senior Member

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    Concord, NH
    I took some of this some time ago, perhaps 10mg? Didn't seem to help at all.

    GG
     
  3. Ema

    Ema Senior Member

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    Midwest USA
    I've taken hydrocortisone for several years on and off. I seem to dip in and out of adrenal insufficiency for some unknown reason on top of the hypocortisolism many of us experience with ME/CFS. I also have a family history of Addison's disease.

    Steroids have definitely helped me both in functioning and in immune response but like everything can be tricky to dose and are not a miracle cure.

    I take 0.25 mg dex at bedtime now and 20-25 mg of HC during the day. I've taken just about every combination of steroid and the combination of a long acting steroid with the shorter acting HC is what seems to work best for me.
     
  4. alice111

    alice111 Senior Member

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    Canada
    @Ema do you take the 20-25 HC spread out or all at once?
     
  5. Ema

    Ema Senior Member

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    Midwest USA
    Spread out.

    Usually something like this:

    7am 5
    1230pm 5
    330pm 5
    630p 2.5
    Bed 2.5
     
  6. roxie60

    roxie60 Senior Member

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    Central Illinois, USA
    I was just prescribed hydrocortizone/cortef but I'm not sure if I should take it. I supposedly have lyme and I do have coinfections and steroids are thought to be not a good idea. Llmd wants me to take 5 mg am, 5 mg 12n, 2.5mg 4p then take. Cortisol manager at bed. I guess I'm scared to add another drug.
     
  7. Jersono

    Jersono

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    I think 10mg but it didn't help much
     
    roxie60 likes this.
  8. roxie60

    roxie60 Senior Member

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    Central Illinois, USA
    12.5 if I dont sleep thru the dose.
     

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