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To those taking hydrocortisone: how much are you on?

Discussion in 'General Treatment' started by alice111, Nov 11, 2014.

  1. alice111

    alice111 Senior Member

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    Canada
    just wanted to get an idea of how much people are taking.
    The dose recommended seems to vary, and since us M.E -ers seem to be ultra sensitive I wanted to know if some people are taking tiny doses, or high doses?
    if you could please note the following:
    -your daily dose
    -what time you take it at
    -how long you have been taking it for
    and of course if you are up for it/ have the time how it has helped or hindered.

    feel free to post if you are taking a cortef equivalent as well such as prednisone or dex.
    thanks so much! :)
     
  2. *GG*

    *GG* Senior Member

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    Concord, NH
    I took some of this some time ago, perhaps 10mg? Didn't seem to help at all.

    GG
     
  3. Ema

    Ema Senior Member

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    Midwest USA
    I've taken hydrocortisone for several years on and off. I seem to dip in and out of adrenal insufficiency for some unknown reason on top of the hypocortisolism many of us experience with ME/CFS. I also have a family history of Addison's disease.

    Steroids have definitely helped me both in functioning and in immune response but like everything can be tricky to dose and are not a miracle cure.

    I take 0.25 mg dex at bedtime now and 20-25 mg of HC during the day. I've taken just about every combination of steroid and the combination of a long acting steroid with the shorter acting HC is what seems to work best for me.
     
  4. alice111

    alice111 Senior Member

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    @Ema do you take the 20-25 HC spread out or all at once?
     
  5. Ema

    Ema Senior Member

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    Spread out.

    Usually something like this:

    7am 5
    1230pm 5
    330pm 5
    630p 2.5
    Bed 2.5
     
  6. roxie60

    roxie60 Senior Member

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    I was just prescribed hydrocortizone/cortef but I'm not sure if I should take it. I supposedly have lyme and I do have coinfections and steroids are thought to be not a good idea. Llmd wants me to take 5 mg am, 5 mg 12n, 2.5mg 4p then take. Cortisol manager at bed. I guess I'm scared to add another drug.
     
  7. Jersono

    Jersono

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    I think 10mg but it didn't help much
     
    roxie60 likes this.
  8. roxie60

    roxie60 Senior Member

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    Central Illinois, USA
    12.5 if I dont sleep thru the dose.
     

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