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To Suffering, Add Anger: Llewelleyn King Blog Post

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by urbantravels, Oct 8, 2010.

  1. urbantravels

    urbantravels disjecta membra

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    Los Angeles, CA
    We previously discussed a blog post by Llewellyn King called "The Awful Disease Washington Forgot" in this thread:

    http://www.forums.aboutmecfs.org/showthread.php?7701-The-Awful-Disease-Washington-Forgot

    It looks like he got some feedback from that post; here is a new post that just appeared called "CFS: To Suffering, Add Anger."

    http://whchronicle.com/2010/10/cfs-to-suffering-add-anger/

  2. acer2000

    acer2000 Senior Member

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    Guys this is a very thoughtful and caring piece. If you read it, you should post comments thanking him for covering this issue. We need to encourage journalists to write more pieces like this that shed light on our situation, and positive comments can only help encourage this.
  3. Berthe

    Berthe Senior Member

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    near Antwerp
    Done already!

    Although with foggy brain and some errors:worried:

    Love,
    Berthe

    http://www.onwilliglichaam.blogspot.com
  4. glenp

    glenp "and this too shall pass"

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    Vancouver Canada suburbs
    Done already!
  5. urbantravels

    urbantravels disjecta membra

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    You know what's so refreshing to see, once in a while? Plain old ordinary compassion. "People are suffering terribly and we ought to be doing better by them." THANK YOU.

    It's nice to be reminded once in a while that compassion exists in people with no particular axe to grind about the disease, especially now while we're in this lull of nothing new coming out except admonishments that nothing is proven, patients shouldn't get too excited, science takes time, etc etc.
  6. Tammie

    Tammie Senior Member

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    Woodridge, IL
    the term "medical death row" really resonated with me....I agree this is a well written compassionate article
  7. Enid

    Enid Senior Member

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    Everything that aids has to be good- from a one who was in just basic survival mode.
  8. Sasha

    Sasha Fine, thank you

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    I've posted an appreciative comment (awaiting moderation) - I agree that when we get good coverage like this, we should post comments praising the writer and encouraging them to do more. There is such an amazing story for any investigative journalist just waiting to be plucked off the tree here...
  9. shannah

    shannah Senior Member

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    According to Heidi Bauer at CFS Chronicles:

    http://cfschronicles.blogspot.com/s...d-max=2011-01-01T00:00:00-08:00&max-results=6

    Mr King did a show about ME/CFS on Friday night. She writes:

    "The White House Chronicle's CFS episode aired this past weekend. The full episode will be posted on the web site at whchronicle.com.
    Please watch, send him a note of thanks and be on the look out for other media personalities who are bursting our bubble."

    http://whchronicle.com/

    Looks like it's up there now.
    Her piece is well worth reading.
  10. sensing progress

    sensing progress Senior Member

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    Tucson, AZ
    Here's the link to watch the episode: http://whchronicle.com/wp-content/plugins/simple-flash-video/video.php?height=320&width=490&file_name=http://whchronicle.net/upload/files/flv/WHC_2029.flv

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