Julie Rehmeyer's 'Through the Shadowlands'
Writer Never Give Up talks about Julie Rehmeyer's new book "Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand" and shares an interview with Julie ...
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Tips for staging a screening of Forgotten Plague

Discussion in 'General ME/CFS News' started by Kyla, Sep 25, 2015.

  1. Kyla

    Kyla ᴀɴɴɪᴇ ɢꜱᴀᴍᴩᴇʟ

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    http://www.forgottenplague.com/tips-for-forgotten-plague-screenings/

     
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  2. Kyla

    Kyla ᴀɴɴɪᴇ ɢꜱᴀᴍᴩᴇʟ

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    @Snookum96
    It looks like they have templates for promotional materials
     
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  3. Snookum96

    Snookum96 Senior Member

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    Thank you Kyla!

    Those are good points, it does seem a bit overwhelming to have to recruit too many people individually!
     
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  4. Sasha

    Sasha Fine, thank you

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    This is very useful advice!

    Very clever idea to get a guest speaker.
     
  5. Tom Kindlon

    Tom Kindlon Senior Member

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    Some topics and themes that come up in the ME documentary, Forgotten Plague:
    ------------------

    I'm working on a press release for the screenings of Forgotten Plague which will go out to national and some local media outlets. I decided I would watch it for a 3rd time to try to get some inspiration.

    In case it is of interest to anybody, I've listed below points or themes that are mentioned in the film.

    - sometimes it has a sudden onset and people can pinpoint exactly when they became ill

    - There can be disbelief which may be due to the invisible nature of the condition

    - People can struggle to get a diagnosis

    - It can feel that your entire life has been stolen from you

    - Often lose the ability to work

    - Often struggle with education

    - Covers the history of the illness

    - Covers some of the symptoms including light sensitivity

    - Mentions how some people can be severely affected including need a wheelchair and also so very severely affected (Whitney Dafoe). Mentions how some people can spend most of today lying down

    - Mentions Ampligen

    - How the illness can often be long-term

    - How it can prevent people getting married or damage relationships. Or that a person will too ill to have children

    -Highlights how some patients were active before the illness

    - Highlights some research that is being done

    - Highlights how it can affect one's ability to have a social life. One can be stuck at home a lot.

    - Includes a radiologist (i.e. at former doctor who is a patient)

    - Highlights how there has been a lack of research

    - Highlights how the name Chronic Fatigue Syndrome trivialises the suffering of the condition.
     
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  6. BurnA

    BurnA Senior Member

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    Good summary Tom. Where is it being shown in Dublin ?
     
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  7. Tom Kindlon

    Tom Kindlon Senior Member

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