i'm still sending my emails in every day. yesterday i called instead! it was fun. i got each director's secretary. i insisted on leaving a message at each of their offices, even tho they told me to talk to the "communications" office instead. and THEN i talked to the communications office also, and left a message there, too. i asked the staff to write down my specific question... "What have you done for ME/CFS today? Patients and their families are waiting." Fauci's office said i was the first to call with this action campaign (i asked). ever! so folks, please call, too. it is easy and it wastes their time, which means they are forced to pay attention to us, which means that if enough of us call, their secretaries have to say to the director, "1 hour of my day was spent answering these annoying calls about CFS." and that means we are on the director's radar screen!!!!! which is our goal! so call, everyone!!! AND FAX. like others, i'm going to try Faxorama, too. heard that it works really well from a few patients. and faxing seems so much better than an email, as an email can be easily dismissed. SO FAXING SEEMS KEY TO OUR DISRUPTION CAMPAIGN! p.s. when i called collins' office, they told me he had gotten a lot of our calls!!!! fax, call, fax, call, fax, fax, fax. call. sounds like a good plan.