New Atmosphere, New Vision: Gibson and Whittemore Kick Off Invest in ME Conference 2016
Mark Berry reports on Dr. Gibson's introduction and Dr. Whittemore's keynote speech, at the 11th Invest in ME International ME Conference in London.
Discuss the article on the Forums.

Thurs Nov 10 - Dr Antony Komaroff on "Hot Areas in ME/CFS Research" - Solve webinar

Discussion in 'Upcoming ME/CFS Events' started by Sasha, Nov 10, 2016.

  1. Sasha

    Sasha Fine, thank you

    Messages:
    12,756
    Likes:
    33,927
    UK
    ahimsa, barbc56, mango and 6 others like this.
  2. Sasha

    Sasha Fine, thank you

    Messages:
    12,756
    Likes:
    33,927
    UK
    Starting any second...
     
    actup, Theodore and AndyPR like this.
  3. BurnA

    BurnA Senior Member

    Messages:
    1,988
    Likes:
    8,796
    Any good ?
     
  4. AndyPR

    AndyPR Cookies for Tired Sam

    It was being recorded, so fingers crossed they will upload it to Youtube. I was only half listening but the underlying message was 'this is biomedical, this is not all in the patients mind'. He basically reviewed all the current ongoing areas of research at the moment, I didn't pick up on anything that I/we haven't been aware of but I could have missed it if there was something. So I would say it was good due to the message being put forward but there was no new information there if you've been keeping up with the reviews of research recently.
     
    Hutan, mango, MEMum and 5 others like this.
  5. shannah

    shannah Senior Member

    Messages:
    1,337
    Likes:
    1,548
    We hear this year after year after year after year .... over and over and over ...

    It's Groundhog Day all over and Bill Murray's not going anywhere else! I fear we'll NEVER get beyond this!
     
  6. AndyPR

    AndyPR Cookies for Tired Sam

    Try living in the UK, they don't seem to have even got their heads around this message yet.

    The underlying message only made up a very small part of his talk, almost all of it was reviewing recent progress in research and what it might mean and hopefully what it will lead to.
     
    mango, MEMum, justy and 3 others like this.
  7. Kati

    Kati Patient in training

    Messages:
    5,424
    Likes:
    19,311
    I screened shot all the slides... anybody wants them shared here?
     
    mango, MEMum, actup and 4 others like this.
  8. shannah

    shannah Senior Member

    Messages:
    1,337
    Likes:
    1,548
    Sure @Kati - that would be great!
     
    MEMum likes this.
  9. Kati

    Kati Patient in training

    Messages:
    5,424
    Likes:
    19,311
    The recording will likely be available in the next few days but the slides are great and great way of sharing them via social media.

    I will post them by batches as per previous slide presentations.

    IMG_1314.JPG

    IMG_1315.JPG


    IMG_1316.JPG


    IMG_1317.JPG


    IMG_1318.JPG


    IMG_1319.JPG
     
    Hanna, mango, Gemini and 7 others like this.
  10. Kati

    Kati Patient in training

    Messages:
    5,424
    Likes:
    19,311
    Second batch:

    IMG_1320.JPG

    IMG_1321.JPG



    IMG_1322.JPG


    IMG_1323.JPG


    IMG_1324.JPG


    IMG_1325.JPG


    IMG_1326.JPG
     
    Hutan, Hanna, mango and 4 others like this.
  11. Kati

    Kati Patient in training

    Messages:
    5,424
    Likes:
    19,311
    3rd batch of slides:

    IMG_1327.JPG


    IMG_1328.JPG


    IMG_1329.JPG


    IMG_1330.JPG
     
    Hanna, mango, MEMum and 2 others like this.
  12. Kati

    Kati Patient in training

    Messages:
    5,424
    Likes:
    19,311
    Batch #4

    IMG_1331.JPG


    IMG_1332.JPG


    IMG_1333.JPG


    IMG_1334.JPG


    IMG_1335.JPG


    IMG_1336.JPG


    IMG_1337.JPG


    IMG_1338.JPG
     
    Hutan, merylg, Mel9 and 6 others like this.
  13. Kati

    Kati Patient in training

    Messages:
    5,424
    Likes:
    19,311
    Batch #5

    IMG_1339.JPG IMG_1340.JPG


    IMG_1341.JPG


    IMG_1342.JPG


    IMG_1343.JPG


    IMG_1344.JPG


    IMG_1345.JPG


    IMG_1346.JPG
     
    merylg, Hanna, mango and 3 others like this.
  14. Kati

    Kati Patient in training

    Messages:
    5,424
    Likes:
    19,311
    IMG_1347.JPG


    IMG_1348.JPG


    IMG_1349.JPG


    IMG_1350.JPG


    IMG_1351.JPG


    IMG_1352.JPG


    IMG_1353.JPG


    IMG_1354.JPG
     
    merylg, mango, MEMum and 2 others like this.
  15. Kati

    Kati Patient in training

    Messages:
    5,424
    Likes:
    19,311
    And lastly...

    IMG_1355.JPG


    IMG_1356.JPG


    IMG_1357.JPG
     
    Hutan, merylg, Chrisb and 8 others like this.
  16. Kati

    Kati Patient in training

    Messages:
    5,424
    Likes:
    19,311
    The recording is now available here:




    Thank you to dr Nahle for hosting and Solve MEcfs for organizing these sessions, they are most interesting and informative.
     
  17. Gemini

    Gemini Senior Member

    Messages:
    616
    Likes:
    1,062
    And thank you @Kati for posting all of Dr. Komaroff's excellent slides!

    Very helpful, let's us go back & read them again.
     
  18. Forbin

    Forbin Senior Member

    Messages:
    890
    Likes:
    3,608
    I've never met him or seen him in person, but I truly admire Dr. Komaroff. I first became aware of him in 1987, but I think he first started to notice ME/CFS cases as far back as back in the 1970's.

    It's true that he was one of the 16 authors of the paper that proposed to replace the the name of the then current "chronic Epstein-Barr virus syndrome" with the term "chronic fatigue syndrome" (after the Epstein-Barr virus was seen to be no more prevalent in cases than other herpes viruses and measles), but that group did not invent the term. The term "the chronic fatigue syndrome" had been floating around and gaining traction as an alternative for a couple of years before that.

    Komaroff has publicly expressed his regret for endorsing the term, which he has called "a terrible name." I'm not aware that any of the other authors of that paper have contributed to the field for some time.

    Komaroff may not be flashy (which is one of the things I admire about him), but he is what you would want a physician/researcher to be: methodical, circumspect, highly informed, committed and involved with getting information to patients. I think he's a hero of the field.
     
    alkt, merylg, MEMum and 3 others like this.
  19. Sing

    Sing Senior Member

    Messages:
    1,629
    Likes:
    1,329
    New England
    The slide on gray matter in the brain, which shows our brains as having a little more than half the normal volume does not suggest to me that the changes in our brains aren't permanent or progressive. Why would gray matter be down, especially by such a high proportion, if this weren't permanent?

    On the slide showing brain activity, a normal level depicted by the yellow is only on the right side. The left side, the usual side that dominates daily rational tasks lacks in activity. This suggests to me that our brains have shifted from the normal left brain dominance to a right brain dominance, or that the right side is trying to compensate for the deficiencies over on the side that normally handles daily tasks.

    Both of these findings correspond to my experience, as do my own conclusions from them, which is that the brain changes are most likely permanent and progressive, and that the brain tries to compensate with whatever other means and capacities it has.
     
    merylg, RL_sparky and Kati like this.
  20. Sing

    Sing Senior Member

    Messages:
    1,629
    Likes:
    1,329
    New England
    Looking at those same slides again, I see now that the gray matter chart does not start at 0, so the the differences aren't as extreme as I first thought. Normal range seems to go from .74 to .71, and ours seem to go from .68 to .65, give or take .01. I wonder how this compares with other diseases?
     
    merylg, Mel9 and Webdog like this.

See more popular forum discussions.

Share This Page