International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
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Throwin up White Flag on Rituxan Also! :(

Discussion in 'Rituximab: News and Research' started by Jacque, May 25, 2013.

  1. smoothfox99

    smoothfox99 Guest

    I couldn't agree more! We need the big bucks like cancer patients get. This disease is debilitating in a way that no one truly understands until they get it. But it needs to get out there. I pray that through film or exposure other ways that the word will get out that we deserve help. We are being tossed aside because they don't even know we exist.

    My friend was at UCLA medical school and I asked a person at her party a future doctor what his thoughts were on CFS? His response: "What's CFS?" So I tell him the other name. He says oh I haven't heard of that one. Yikes! That means new doctors aren't being taught to see this disease either. I met with the friend who is now a doctor to get her take on things she told me to see a psychiatrist. It makes me sad because it doesn't bode well. CFS is rare in the minds of the medical community it is hard to be seen when no one wants to look.

  2. Firestormm


    Cornwall England
    Thanks Rachel. Keep your chin up kiddo. Get some rest now - that's a heck of a session responding, though we sure appreciate it. Be kind to yourself :)
    Misfit Toy likes this.

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