Discussion in 'Action Alerts and Advocacy' started by Sasha, Aug 8, 2015.
Excellent ideas from #MEAction:
I can't tweet but I'm doing this one, for sure!
I agree with taking positive for the severe on this day & generally think me action are fab. I would not call it "celebrate" at all (very odd choice of word) but marking, the other half of the purpose of the day is to remember those who have not made it through to this day including Sophia Mirza whose birthday it would have been today
Good point about 'celebrate' - I've changed my thread title accordingly and have made it clear that Severe ME Day is today.
I really hope those who can will donate to the END ME/CFS study.
Raising awareness is great - and raising money is key to making rapid research progress.
I think the next two or three years - the rixutimab trials, the END ME/CFS study, the CII microbiome study - could be transformative for us.
Excellent blog here by disability activist Catherine Hale about her illness:
You can also try a Google Site Search
Separate names with a comma.