Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Three MPs raise questions about ME and XMRV with the UK Government

Discussion in 'Action Alerts and Advocacy' started by fred, Oct 22, 2010.

  1. fred

    fred The game is afoot

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    On ME agenda.

    http://wp.me/p5foE-3bx

    Caroline Lucas, leader of Green Party and MP for Brighton Pavilion, tabled two written questions on the blood ban which is to be imposed on everyone in the UK who has ME/CFS from November 1.

    In the first, she asked the Secretary of State for Health on what date his Department’s decision that people with myalgic encephalomyelitis should not give blood was (a) made and (b) implemented.

    In her written reply on 19 October 2010, Anne Milton (Parliamentary Under Secretary of State for Public Health) wrote:

    In her second question, Caroline Lucas asked the Health Secretary whether – with reference to an answer given to the MP for Stroud on 27 January* whether (a) the UK Blood Services and Health Protection Agency study of the prevalence of a rodent virus linked to ME and (B) his Department’s risk assessment in respect of the study had been completed; and if he will make a statement.

    Anne Milton replied:

    *The 27 January Parliamentary Question
    http://www.meassociation.org.uk/?p=831
     
  2. fred

    fred The game is afoot

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    Also on ME agenda.

    http://wp.me/p5foE-3bx

    The Minister for Public Health, Anne Milton, has responded to related questions from two MPs about what the Department of Health plans to do with blood from people with ME that is held in storage or whether he has any plans to screen blood already held in storage for the XMRV virus.

    David Anderson (Labour MP for Blaydon) asked if the Department of Health would be screening blood held in blood banks for the XMRV virus. And Sharon Hodgson (Labour, Washington and Sunderland West) asked whether the Department would be removing from storage blood donated by people with ME.

    In her written answer on 20 October 2010, the Minister replied:

     
  3. fred

    fred The game is afoot

    Messages:
    400
    Likes:
    2
    Also on ME agenda.

    http://wp.me/p5foE-3bx

    Parliamentary Written answers and statements, 21 October 2010

    David Anderson (Blaydon, Labour)
    David Willetts (Minister of State (Universities and Science), Business, Innovation and Skills; Havant, Conservative)

    Hansard source* (Citation: HC Deb, 21 October 2010, c867W)

    *http://www.publications.parliament..../cm101021/text/101021w0002.htm#10102163000056

    Chronic Fatigue Syndrome

    Mr Anderson: To ask the Secretary of State for Business, Innovation and Skills if he will provide funding for research on the relationship between retrovirals and myalgic encephalomyelitis. [18037]

    Mr Willetts: The Medical Research Council (MRC) is one of the main agencies through which the Government support medical and clinical research. In keeping with the Haldane Principle, prioritisation of an individual Research Councils spending within its allocation is not a decision for Ministers. Such decisions are rightly left to those best placed to evaluate the scientific efficacy of proposed research.

    The MRC is committed to supporting scientific research into all aspects of ME, including studies into the biological basis of the condition and evaluations of treatments. In 2009/10 the MRC spent 109,000 on research directly relating to ME.
     
  4. Sasha

    Sasha Fine, thank you

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    UK
    The UK seems to be being swamped beneath a tidal wave of bullshit this week! This lot, the PACE manual...

    I'm off to bed. Maybe something good will have happened by the time I wake up tomorrow!
     

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