The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
Discuss the article on the Forums.

Three Approaches to CFS in the UK, Australia, and Canada: Lessons for Democratic Policy

Discussion in 'Latest ME/CFS Research' started by Dolphin, Aug 22, 2016.

  1. Dolphin

    Dolphin Senior Member

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    http://link.springer.com/chapter/10.1007/978-3-319-32240-7_11

     
    Last edited: Aug 22, 2016
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  2. Dolphin

    Dolphin Senior Member

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    These relate to these 3 guidelines, which are quite old at this stage:
     
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  3. Dolphin

    Dolphin Senior Member

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    If you are not a fan of guidelines which recommend CBT and GET and recommend against pretty much everything else, you might like what they have to say. However they take a long time to say it and such points come and go in the document.
     
  4. Dolphin

    Dolphin Senior Member

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  5. Dolphin

    Dolphin Senior Member

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  6. Dolphin

    Dolphin Senior Member

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  7. Esther12

    Esther12 Senior Member

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    In the references it looks like it was written during 2014/early 2015, so pre-Tuller.
     
  8. Dolphin

    Dolphin Senior Member

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  9. Dolphin

    Dolphin Senior Member

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    This is what the 2006 report actually said on the issue:
     
  10. Dolphin

    Dolphin Senior Member

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  11. Dolphin

    Dolphin Senior Member

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  12. Dolphin

    Dolphin Senior Member

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  13. Kati

    Kati Patient in training

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    Canada has done nothing at all. Dr Carruthers lost his clinic mid 1990's, after Wessely came to Vancouver and told our doctors we had false illness beliefs. Carruthers never had it easy and was never allowed to use any kind of medication including Immunovir. He worked in the shadows, at least in his late years. When I saw him he was practicing out of a physiotherapy office, in a treatment room. That's how I was referred to him in the last months he was able to practice, it was really hush hush, I had to jump through hoops.

    Recently while looking up the Canadian government health pages, a link pertaining to 'chronic fatigue syndrome' transferred to a site about occupational fatigue. They now changed it to a link to the CCC. But quite honestly, the CCC here in Canada is not widely distributed nor widely known. It is not taught in med schools.

    I wrote several letters to the health minister and Public Health Agency of Canada throguhout the years I was sick. Essentially, the public health officer was awaiting for the CDC to move to action, and you know where that leads. The Research institute president was pointing me out to the Cochrane reviews. You know where that leads.

    There is no leadership here. The medical schools think it's all in our heads. Some provinces nestle ME inthe 'Environmental illness' category (Ontario) which means it gets little to no funding at all, and patients there are only allowed 2 visits: one for diagnosis and one for 'follow up' whatever that means. Here in BC, it's group therapy a go-go. There is no testing and there is a tendency to reframe ME, FM and Lyme under Central Sensitivity Syndrome. i hear there is a very strong influence from the psych lobby university in BC.

    Disclosure: I didn't read the article. (Reading hurts my head)
     
    Last edited: Aug 23, 2016
  14. Dolphin

    Dolphin Senior Member

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  15. Dolphin

    Dolphin Senior Member

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  16. Dolphin

    Dolphin Senior Member

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    Criticisms of Evidence-based Medicine


    @alex3619
     
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  17. Dolphin

    Dolphin Senior Member

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  18. Dolphin

    Dolphin Senior Member

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  19. Dolphin

    Dolphin Senior Member

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    Dolphin Senior Member

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