Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Thoughts on subgroups of CFS ?

Discussion in 'General ME/CFS Discussion' started by ash0787, Nov 3, 2016.

  1. ash0787

    ash0787 Senior Member

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    Wondering what the community consensus is on this, in light of the current scientific evidence

    I've seen examples of a few people that have managed to cure or mitigate their CFS symptoms with certain discoveries and interventions for example one found it was due to a thyroid issue, another found that taking nitrous oxide helped, then there was a guy from china just this week that found he had a documented type of neurological autoimmunity, others have success with antivirals etc

    Thoughts on how this relates to the development of seemingly accurate diagnostic tests ?
    maybe the underlying cell behavior is the same despite different underlying causal factors,
    or perhaps these people would be the outliers, such as the % of non responders to rituximab ?

    Or do we think there is a 'core' of CFS which is as yet untreatable, and the people that have been cured don't have this 'core' CFS, would it be fair to say that is the 'real' disease and the others are just similar looking ?
    That doesn't seem particularly fair to me though because it seems to downplay their experiences and its also reminiscent of a ' no true scotsman' fallacy.
     
  2. lansbergen

    lansbergen Senior Member

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    In my opion you can not say they do not have the core. For instance it can be lower infection dosis and/or frequentie or a less fiercely response to the agent.
     

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