Discussion in 'Action Alerts and Advocacy' started by taniaaust1, May 6, 2014.
As I understand it they did not rest soon enough.
wow.. that would make sense. Any patients who got sick were already in bed and resting so recovered and the nurses etc would of had a hard time with taking time off while sick so many would of tried to keep working...
This epidemic then I guess could be used to try to prove the benefits of rest esp early illness...
I am confused about what you were laughing about and what "article" are you referring to?
There were about 60 documented cluster outbreaks in the U.S., U.K, Canada, and contiguous countries between 1934 and 1984. If there have been any clusters after 1992, they have been below many people's radar.
The disease, named Myalgic Encephalomyelitis, (M.E.) was changed by the CDC to "Chronic Fatigue Syndrome" (cfs) and given a sloppy, incomplete, and inaccurate diagnostic criteria. If you have been diagnosed with cfs you may have something other than M.E.
M.E. was, and is, in my lay educated belief, a discreet illness precipitated by a single pathogen that has managed to so change our CNS such that we cannot resist, (immunological dysfunction) other pathogens. Along with that dysfunctions, we have several others which I will not list because it hurts to type and I don't want to be wrong.. See NAME-US.org M.E. for the details.
There are pathogens with long lasting impacts. Talk to the people with "post polio" syndrome. Polio is caused by an enterovirus. An enterovirus was long believed to be the cause of M.E. Until someone proves me wrong, I still find it plausible. So doe Dr. Chia, one of our experts. Several others, I hear, are beginning to return to that hypothesis.
On another topic-- mass hysteria--I think there is a lot of it --at the CDC/HHS. OMG, what will they do if the Insurance Magnates think they are letting M.E. go public? Who will make the yacht payments?
That other was laughing at the CDC zombie article http://blogs.cdc.gov/publichealthmatters/2011/05/preparedness-101-zombie-apocalypse/
There are lots of good reasons to believe the cluster outbreak cases could indeed be autoimmune (though this should include autoinflammatory) or involve genetics. Many people come down with these pathogens, but only some get ME. Indeed we know that an ME-like syndrome results from around 10% of some kinds of infections, and the main predictor is severity of initial symptoms. Something changes in these patients. The debate is about what changes, why it changes, and what happens over time.
I'm a quarter of a teeny tiny cluster!
I spent Christmas 2003 with Michael and my brother and his partner from London - 500 miles from where we live, so they and we are not used to the same bugs.
My brother's partner had a horrible 'flu he brought with him.
Only he suffered from it, the rest of us were only affected mildly.
Two months later, my brother's partner and I (unrelated and from different ends of the uk) got ME.
My brother got a 9 month PVFS, and still has to be careful, my partner suddenly got IBS.
All 4 of us were affected in the long term. But not in the same way, and not depending on who is related.
I was not laughing at M.E. man relax, it was in response to the zombie article because that was humorous., If you knew me a bit better then you know I would not make insensitive comments like that, I know full well how challenging chronic illness is. even the massive frustration at not being believed or taken seriously because of a lack of provable testing for active issues.
Judging from the CDC's past history, probably they'll rename zombie-ism CWFD - Chronic Walking Funny Disorder.
We already have the "Ministry of Funny Walks" well-established here in the uk.
John Cleese was the founder.
haha, yes! I'm a member of that myself, specializing in the ME/CFS Slow-Motion Stagger.
You're showing your age... must be somewhere near mine.
I really couldn't figure out what "article'. Sometimes (most times) I read things in pieces and my brain is trained to "posts." My brain is getting very small, like the undead!
I am sorry my reaction did not reflect your intent. Also, it was not meant to be ubber hostile but more protectiveness and inquiry. Believe me, we get a lot more crap from people we know than a simple laugh. As it appears you already know. And I do so much like to return to M.E.'s origins. So, truce?
And thanks for being so gentle with me. Today I practically got my hide torn off by someone I have known most of my adult life. I don't think she had a clue of her impact. Unfortunately, at times I do not know mine.
Truth be known, she is a retired high profile criminal devouring prosecutor. I think she forgets that she isn't prosecuting. I watched her take down one of the nation's most well known criminal evidence experts. An amazing show. So, that I still have my skin after today is a minor miracle. Iz
BRAVO! BRAVO! taniaaust1 A bow to you Madam for taking on the CDC. A Masterful piece. Thank you. Thank you. Izola
Thank you, peggy-sue, Valentijn and Sidereal and you quiet shy one, for your likes!!
And, thank you roseblossem and Peggy-Sue and whoever I missed, for your foregoing vaudeville act. You'all cracked me up so hard I almost fell off my bed.
You can also try a Google Site Search
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