I spent a little time on the internet yesterday:
Dr. Wallace Schwam| Internal Medicine
Absent hard biological evidence, Chronic Fatigue Syndrome might lots of people as "Sick" who are in monotonous jobs, bad marriages, or plain bored with life.
After 46 years experience, he retired to his CA home, from which he throws abusive barbs on the internet.
Dr. Dario Zagar Neurology
The new name seems to be nothing more than an exercise in rebranding. At best it is redundant--what additional information does the word "systemic" provide to "exertion intolerance disease". Next, given the lack of clear etiology in most cases, it still remains more of a syndrome than a disease; there could potentially be various causes for the same constellation of symptoms. That makes "exertion intolerance syndrome" a more accurate moniker; given that people have fatigue even in the absence of significant exertion in most cases, why is that any better a description than "chronic fatigue syndrome"? Well, at least they didn't choose myalgic encephalomyelitis, which is simply incorrect.
Only 12 years experience in CT, President and managing partner with 8 other neurologists. His comments make him seem reasonable.
Dr. Kathy Pittaway Psychiatry/Mental Health
This sounds way too much like de conditioned individuals w/o motivation or desire to resume activity. Please, let's not pathologist all human experience.
Age 63, VT, seems to be retired, thank goodness.
Dr. Phil Gauthier Internal Medicine
great, disability here I come! glad I got that plan a long time ago.
20 years experience, head of hospital transplant team in CO. I'd imagine he sees ME/CFS patients as EBV can be reactivated in transplants plus the trauma of the surgeries could trigger disease.
Dr. Dan Mullin Emergency Medicine
So CFS/ME is a disease where patients are usually middle-aged, tired, depressed, have sleep difficulties and muscle aches. Lab work is essentially normal, and it's treated with better sleep habits, healthy diet, exercise, NSAIDs, antidepressants, etc. I think the incidence is much higher than what is published. I like the treatment but hate the diagnosis. We, as physicians, have to stop giving out so many diagnoses, especially those that sound dangerous like Myalgic Encephalomyelitis. Patients hold onto those diagnoses forever, thinking they have something real and serious. The symptoms are real and easily treated, but it's not serious and doesn't need a diagnosis. Everyone has these feelings during their lives...some for a couple months, some for six months, some for much longer, some just handle them better than others.
12 years experience at a major university (teaching???) hospital in PA.
Dr. William H. Warrick III MD Family Medicine
Freud had a better name for it: Nuresthenia.
Age 71, retiring in June. Worked for an Integrative Med Practice in FL.
Dr. Donald Gehrig Internal Medicine
aka, major depression with somatic complaints...which is still just too inconvenient and unacceptable for most and gets no extra funding for IOM types...why would the IOM be the decider on this? major depression IS real...not dealing with that is UNreal
Independent practice in MN.
Dr. robert bayer General Practice
what a huge pile of crap......bring on the clowns
Unfortunatley, there are too many Robert Bayers to pinpoint which one is responsible.
David Baker Physician Assistant
Disability here I come. Definitely declining in my occupation, social and recreational ability at 50. I am sure I have some cognitive decline in a burgeneoning computer age. I definitely have post exertional malaise. My workouts and 100 mile bike rides are followed by a crash and even occasional post exertional orthostatic hypotension. I am almost there to disability retirement. Why not -its a carreer choice for so many of my patients.
This is another basket diagnosis that will be used by lackluster practitioners to avoid a proper work up and possible discovery of true pathology. I see this with FM patients that have bursitis, arthritis and tendonitis in varying degrees with a PCP who is to busy to workup multiple problems.
There are 2 David Baker, P-AC's. One with a Neuro Pain Medical Center in CA (my money's on this one) and another in NC.
Dr. Paul Rochmis
First it was neurasthenia, then non-articular rheumatism, then psychogenic rheumatism, then fibrositis, then fibromyositis, then back to fibrositis, then fibromyalgia syndrome......now "SEID." When will it end?
Rheumatology, retired.
Dr. wahid tazudeen Neurology
Um...you might want to get a second opinion on your diagnosis. That sounds like something else.
Hospital in IL.
So that's the roll call. There are several names from
@Sidereal 's initial post missing, but there were too many docs with those names so I couldn't narrow it down to just one. It's interesting to note that apx 40% of those identified are retired.