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9th Invest in ME International ME Conference, 2014 - Part 1: Autoimmunity and ME
Mark Berry begins a series of articles on the 9th Invest in ME International ME Conference in London, with a look at three presentations on autoimmunity
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Third day on Valcyte. So far so good.

Discussion in 'Antivirals, Antibiotics and Immune Modulators' started by vamah, Feb 24, 2013.

  1. RUkiddingME

    RUkiddingME Senior Member

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    Canada
    I know I posted this on another tread last week, I just pray so hard that all you Valcyters out there can experience the improvement I'm going through right now. It's not a dream. Even this week (week 16) II found myself standing in the garage talking to someone and realized I had been standing still for at least 15 minutes without feeling I was going to collapse. I had not felt normal standing up in 3.5 years. OI was one of my very first symptom when I got sick. Good luck, I want so bad for everyone to improve on this stuff!! I was practically in a coma for 6 weeks and one day I got up and the magic started.
    http://forums.phoenixrising.me/index.php?threads/my-possible-valcyte-miracle.22847/#post-349928
  2. vamah

    vamah Senior Member

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    Washington , DC area
    Thanks for the encouragement. I am feeling discouraged right now because I was feeling a lot better for a couple weeks, then I got back from a short vacation, completely crashed, and have felt awful since. I know it is my own fault. I felt good and I wanted to act like a healthy person so I did and now I'm paying for it. I have been on Valcyte for about 8 weeks now, so I know it's too early to expect to feel a difference, but I am an impatient person! Having a really hard time with muscle pain that makes it even harder to sleep than usual and no OTC paid meds seem to do any good at all.

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