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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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hey @roonie, I fixed my gastric reflux by taking 10 drops of oregano oil in water 3-4x per day. I now only take oregano oil morning and night. I have a sneaky suspicion that reflux can be caused by SIBO .;....i do neti all the time and it helps. All i know is i have severe GERD and i used to get nose bleeds from blood litterally being pushed up from my esophogis(spelling?). Now that im on some sort of diet, my nose bleeds have been, well, lets just say, in controll for now. As soon as i get around a nasty chemical the process starts all over again. I am living in a bubble really , to try keeping this all under control. Its an immune response to, i believe, an infection that never got dealt with so the immune system tried, and failed to get rid of it. Infection from what...i believe the abx i was on for a yr. straight opened the door for some nasty bugs
@Elph68 very good and comprehensive research you have done from my opinion! Well done! You mentioned at one point that you are taking soil based organisms ? Could you elaborate more on those please?
I understand your frustration @roonie, it is no different here in Australia .... and where I am here in Tasmania, it is the worst ...... our problem is, we don't know how to talk to them in their language ..... so let's change it here and now!!!!elph68...ive tried oil of oregano to no avial.
the biggest problems we face up here in Canada is a heath care system that never seems to want to get to the root cause of anything. Its great that our health care system is paid for but we get nothing in return but pills to cover symptoms...very sad. The drug companies have their hands in too many pockets. I believe the reason we are all not getting answers from the governments, researchers, etc. is that we are delving into, and looking for the truth and "they" dont like it when anyone comes knocking for the truth as there is no money in the truth (cure) so we are all left to fend for ourselves. Why fix a system that keeps people coming back for more.
It reminds me of a T shirt i seen that stated..."trust me..im a doctor"
elph68...your thinking/information is so close to dr.Ritchie Shoemaker's. He has a website...survivingmold.com and has claimed to have helped tons of people get their life back. He has a 14 point treatment and says we will never get our health back without getting these infections out of all of the areas in our bodies including our noses.
Here is the thing though.....many people that have CFS claim to have been on antibiotics and believe antibiotics did this to them....if you look at how antibiotics are made, many of them derived from mold, it could be possible that we have ingested mold from the very antibiotics that we took so many years prior to getting sick. I personally was on over a year straight of tetracycline for which my acne never went away...but sunlight made it go away in only a couple weeks. Acne was on my back so bad that i, at the age of 17 never wanted to take my shirt off in public so i took my shirt off in my back yard and my acne dissapeared. I honestly believe tetracycline did this to me and because was on them for such a long period of time, i had/have the worst case of cfs that ive ever heard of...I DAM NEAR DIED!!!
My dear friend ...(who just passed away)....a gastro piediatrician that i was fortunate to be a good friend of for 20+ yrs....after spending many years with, thinks ive been concussed as ive had two bad car accidents and probably countless other head injuries as a child in sports and rough play. Many people get this from a loss of a family member or other stressor that triggers this....its all the same thing in my eyes. Hell...the NFL football players get this and commit suicide or die prematurely. ITS A CHANGE IN GUT FLORA!!
Antibiotic resistant bacteria could be one of the main factors in this disease : Streptococcus , Staphylococcus , Enterococcus - all these lactic acid producing bacteria creates loads of problems.
Check out this video on how bacteria are evolving and getting stronger and stronger despite the heavy antibiotics usage.
http://www.npr.org/sections/health-...vade-antibiotics-and-transform-into-superbugs
Also @roonie 's statement with antibiotics is so true! I have collapsed and entered into bedbound state of CFS after Amoxicillin 500mg usage! My dad developed a 9cm fungal growth in the colon after massive usage of antibiotics and had to be removed with surgery! They are made from mycotoxins ( aflatoxins, ochratoxin,etc. ) and these substances can do damage further.
These drugs can be so helpful if you are dying , if you are into such a serious infection - meningitis , inflammation of the brain ,etc. they can for sure save your life but prescribing them for every flu and what not destroys everything in your body , all the good microbiota is gone , plus now the opportunistic/ antibiotic resisstant Strep ,Staph, Enterococcus takes advantage and they multiply like crazy.
There are also some new discoveries in CFS posted yesterday :
Problems with Citric acid cycle ( the one that generates almost all of the energy ) , so I would say that toxicity is involved as well, therefore a multitude of factors are creating this disease.