Discussion in 'Action Alerts and Advocacy' started by AndyPR, Aug 14, 2017.
from may 2017
Issue Advisory: Research Needed for ME/CFS
By Kathryn Gimborys, NOW Public Policy Intern, with contributions from Rivka Solomon and Emily Taylor, of Solve ME/CFS Initiative, May 10, 2017
ISSUE ADVISORY: NOW Foundation Women’s Health: Research needed on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Neglected and Misdiagnosed Disease that Strikes Mostly Women"
Hi Everyone -
Please hold off (for now) on sharing the Issue Advisory. N.O.W. would like to make some changes to this document before it is cleared for wide distribution. I will be sure to share it when it has the green-light for promotion.
Hi all, this National Organization for Women "Issue Advisory" has been updated and had the necessary corrections made to it. We can now publicize it, if we wish. Here is it:
ISSUE ADVISORY: NOW Foundation Women’s Health: Research needed on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Neglected and Misdiagnosed Disease that Strikes Mostly Women
May 12, 2017
Rivka’s Mysterious Illness – When NOW member Rivka Solomon was 21 years old, she contracted mononucleosis. However, instead of recovering normally, she remained sick and incapacitated for a year. She was forced to withdraw from her social activities, she was unable to leave her home, and she was unable to exert any physical and intellectual energy without experiencing subsequent extreme exhaustion and physical pain.
However, all her medical tests came back negative, and no doctor could find a cause, let alone a cure, for the condition that had devastated Rivka’s life. After a few years of spontaneous remission, her symptoms returned and she was once again forced to put her life on hold. As Rivka herself puts it “my body just collapsed.” ...
(The article goes on from there!)
It would be most helpful to be able to show the NOW letter to Congress from August to women's organizations in other countries.
Is it OK to share the August letter now? Do you have a link where it's available?
You can also try a Google Site Search
Separate names with a comma.