Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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The Time Has Come Tuesday, February 22, 2011 from Co-cure email

Discussion in 'Action Alerts and Advocacy' started by *GG*, Feb 23, 2011.

  1. *GG*

    *GG* Senior Member

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    Concord, NH
    I feel we are coming to a crossroads with me/cfs and need to act soon. I am in the preliminary stages of planning a demonstration in front of the CDC. I have nearly 20 people at this time who are commited to be there.

    For this to be effective, we need to have at least 10 times that number. This is why I am asking your organization and many others to get involved. Together, we could accomplish something really significant. A large demonstration would bring much needed national attention to a very serious issue!

    With proper media coverage, the american public will finally be informed of this new and emerging threat. This should also lead to more funding for research as well as warning the public about the blood supply. We need to take action now, for our future and our past (see attachment)! We all need to step up to the plate and get this done. Demonstration is planned for early May, which is enough time to get this right.

    Your participation in this event would be greatly appreciated, Thank You , James Hall, Myrtle Beach, S.C. jh0867@sccoast.net (843) 903-0867
     
  2. *GG*

    *GG* Senior Member

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    I don't think I could make it to Georgia, right location? But I am willing to donate some money to help people/a person get there!

    GG

    PS not sure what he is referencing when saying: see attachment. anyone know?
     
  3. eric_s

    eric_s Senior Member

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    Switzerland/Spain (Valencia)
    In and around Atlanta there must be a couple of thousand of people that have ME/CFS. So i hope it will be possible to find them... In the thread about the demonstration some people were concerned it would not be done in the style they prefer, but i really think it's very important that whoever is able to will participate, so please get over those issues and fnd a compromise and participate, even if it might not be exactly the way you wish. This is a chance and we should make it work!
     
  4. justinreilly

    justinreilly Senior Member

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    NYC (& RI)
    Why are you asking us? You're the one who posted it. : )

    Is there a central discussion here or somewhere else on this. is it the demonstration thread on PR which was also started by jimbob author of the above? i think we all need to get in one discussion to the extent practical. I will donate money.

    http://forums.aboutmecfs.org/showthread.php?10032-Demonstration-at-the-CDC
     
  5. *GG*

    *GG* Senior Member

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    Concord, NH
    Thanks for the link, missed that somehow. I mention the attachment because I figured someone else might know what was missing, perhaps it was just a glitch with my email/computer, lots of people get the Co-cure's emails, so I thought the missing piece might be important?
     

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