Home care is the theme for Severe ME Day on August 8th
Why should home care be the theme on Understanding and Remembrance Day for Severe ME on August 8? Helen Brownlie of the 25% ME Group has written an explanation for Phoenix Rising ...
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The "shrinking" of CFSAC!

Discussion in 'Action Alerts and Advocacy' started by Nielk, Sep 17, 2013.

  1. Nielk


    On September 12th, HHS (CFSAC team) sent an e-mail to their listserv with the following announcement:

    Their timing of this new meeting "format" is very dis concerning. This fall meeting is really of the essence. There is so much on the plate right now to discuss.
    1- the IOM "travesty"
    2- there has been no (zero) response from them regarding the allegations of threads to some CFSAC members, eventhough three letters have gone on to them from advocates asking for answers.
    3- the CDC refusal to include the two day testing in their study
    How is it that they have a million dollars to sign a contract with IOM but don't have enough for a "live" meeting of CFSAC?
    See Jennie Spotila's excellent blog about this here

  2. jspotila

    jspotila Senior Member


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