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Never Ask Us if We're Hungry -- The Answer's Always No
There are three of us here and for many years, none of us ever got hungry. When our brains would turn to mush, when our faces would go numb, and we would start the invisible vibration which is the signature dance of ME/CFS, we knew we needed to eat.
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The "shrinking" of CFSAC!

Discussion in 'Action Alerts and Advocacy' started by Nielk, Sep 17, 2013.

  1. Nielk

    Nielk

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    Queens, NY
    On September 12th, HHS (CFSAC team) sent an e-mail to their listserv with the following announcement:


    Their timing of this new meeting "format" is very dis concerning. This fall meeting is really of the essence. There is so much on the plate right now to discuss.
    1- the IOM "travesty"
    2- there has been no (zero) response from them regarding the allegations of threads to some CFSAC members, eventhough three letters have gone on to them from advocates asking for answers.
    3- the CDC refusal to include the two day testing in their study
    How is it that they have a million dollars to sign a contract with IOM but don't have enough for a "live" meeting of CFSAC?
    See Jennie Spotila's excellent blog about this here




  2. jspotila

    jspotila Senior Member

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