Lipkin's Monster ME/CFS Study: Microbes, Immunity & Big Data
The Microbe Discovery Project outlines an ambitious new study by top researchers that has collected patient samples, but needs desperately funds to complete the work.
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The "shrinking" of CFSAC!

Discussion in 'Action Alerts and Advocacy' started by Nielk, Sep 17, 2013.

  1. Nielk

    Nielk

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    On September 12th, HHS (CFSAC team) sent an e-mail to their listserv with the following announcement:


    Their timing of this new meeting "format" is very dis concerning. This fall meeting is really of the essence. There is so much on the plate right now to discuss.
    1- the IOM "travesty"
    2- there has been no (zero) response from them regarding the allegations of threads to some CFSAC members, eventhough three letters have gone on to them from advocates asking for answers.
    3- the CDC refusal to include the two day testing in their study
    How is it that they have a million dollars to sign a contract with IOM but don't have enough for a "live" meeting of CFSAC?
    See Jennie Spotila's excellent blog about this here




     
  2. jspotila

    jspotila Senior Member

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