Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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The "shrinking" of CFSAC!

Discussion in 'Action Alerts and Advocacy' started by Nielk, Sep 17, 2013.

  1. Nielk

    Nielk

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    On September 12th, HHS (CFSAC team) sent an e-mail to their listserv with the following announcement:


    Their timing of this new meeting "format" is very dis concerning. This fall meeting is really of the essence. There is so much on the plate right now to discuss.
    1- the IOM "travesty"
    2- there has been no (zero) response from them regarding the allegations of threads to some CFSAC members, eventhough three letters have gone on to them from advocates asking for answers.
    3- the CDC refusal to include the two day testing in their study
    How is it that they have a million dollars to sign a contract with IOM but don't have enough for a "live" meeting of CFSAC?
    See Jennie Spotila's excellent blog about this here




     
  2. jspotila

    jspotila Senior Member

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