Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
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"The SEID Criteria: How do you like your porridge?" (March 14) by Tina Tidmore

Discussion in 'Institute of Medicine (IOM) Government Contract' started by Dolphin, Mar 14, 2015.

  1. Dolphin

    Dolphin Senior Member

  2. Ember

    Ember Senior Member

    Tina writes, “The IoM committee took the approach of trying to find the disease features that are different in this disease from others. That is why they did not include myalgia or other pain.” By that standard, why did the Committee include other core symptoms: fatigue and impairment, unrefreshing sleep, cognitive impairment and orthostatic intolerance?

    Tina agrees that neurocognitive impairment and autonomic dysfunction should be optional:
    The problems that Tina describes remain, however, when either neurocognitive impairment or autonomic dysfunction is required.

    Finally, Tina argues that PEM should be renamed:
    Tina's criticism could be made of SEID itself: “It's more vague and can include just not having motivation, being slow. It's not specific enough to describe what we have which is like we're sick with some illness, an infection.... It's misleading and confusing.”
    Wildcat likes this.

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