New era for ME/CFS research as top cytokine study attracts media headlines
The immune systems of patients who have recently developed ME/CFS look markedly different from those who have been ill for much longer, according to a major new study from Drs. Ian Lipkin and Mady Hornig at Columbia University. This shift in immune function hadn’t been seen before.
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The See Saw known as CFS...do you have this?

Discussion in 'General Symptoms' started by Misfit Toy, Mar 5, 2010.

  1. gracenote

    gracenote All shall be well . . .

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    Santa Rosa, CA
    Sallysblooms,

    I like your screen name.

    I'm sorry things are so hard for you. I'm also feeling pretty low today. After a couple of nice warm spring days, it's cloudy again bringing back all my aches and emotional lows.

    I have a few flowers that have survived my neglect and are blooming now, but I would dearly love to have a garden along with a gardener! I'm thankful for my big old oak tree and a beautiful maple tree that take care of themselves; they are coming to life again after the winter. My white irises are also self-sustaining and will be blooming soon. Things that grow and bloom always feed my hope.

    May we all have more beautiful days ahead.
     
  2. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

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    Southern USA
    I can still take care of my african violets with hubby's help. The yard is pretty, but like I said, others do it for me. Flowers REALLY lift my spirits! [​IMG]
     
  3. strawberry

    strawberry Guest

    I get a see-saw effect. There are extreme shifts but it's not so much good days and bad days but rather constant fluctuation and episodic flare-ups that appear out of the blue and last anywhere from 30 minutes to several hours.

    Fluctation seems to be due to ion channel dysfunction. Here are two paragraphs from a very good article discussing it. The whole thing is worth reading.

    http://fmcfsme.d-3systems.com/cfs-symptoms.php#Channelopathies
     
  4. bigmama2

    bigmama2

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    FL, PA
    hi all.

    the see saw effect. i TOTALLY have this. you all described it very well. dealing w good days and bad days and the unpredicatbility of it all is very very hard emotionally. my brother also has cfs and it is the same deal with him. the bad days/crashes can lead to depression. who the he-- wouldnt be depressed when you are sick in bed feeling like crappe for days. and then when you start to feel better and have some good days and if you are lucky to have a good week- you start making plans- like wow maybe i can go back to work and get a life etc.

    up and down up and down

    bigmama2
     
  5. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    australia (brisbane)
    push crash is another saying, going through abit of a crash myself, i can understand the depression thing too, if 'crashed' for too long its frustrating. All i can say is u have to try and sleep it off, like a hangover, lol.

    cheers!!!
     
  6. ramakentesh

    ramakentesh Senior Member

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    I have POTS, CFS and Ankylosing Spondylitis and they all wax and wane like you describe - its funny because most autoimmune illnesses do this - which always makes me wonder whether CFS / POTS is also autoimmune based.
     

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