Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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"The results they really didn’t want you to see: key ME/CFS trial data released" (The Canary, Oct 2)

Discussion in 'General ME/CFS News' started by Dolphin, Oct 2, 2016.

  1. Dolphin

    Dolphin Senior Member

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    Justin30, moosie, MEMum and 23 others like this.
  2. BurnA

    BurnA Senior Member

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    MEMum, medfeb, Hutan and 6 others like this.
  3. Esther12

    Esther12 Senior Member

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    We are the main story on their homepage.

    I don't know much about The Canary, but I do see them discussed a lot on-line as an influential lefty news source. I think that they're now bigger than a lot of widely known magazines like The Spectator and stuff.
     
    moosie, MEMum, Jan and 12 others like this.
  4. Yogi

    Yogi Senior Member

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    He is a Forensic psychologist
     
    Last edited: Oct 2, 2016
    moosie, Kati, MEMum and 25 others like this.
  5. Esther12

    Esther12 Senior Member

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    My partner just pointed out that it's really amazing to have such a good piece promoted in a way that means it's likely to have a really wide reach, and I don't seem to realise it.

    This PACE stuff has been getting bigger and bigger in a way that means I can take it for granted, but this piece is really on our side, really well referenced, and has a great chance to attract yet more attention. I think that knowing all the details means that we can forget what a crazy and dramatic story this is, if we can just get people to start looking at the evidence instead of trusting authority figures.

    My dad e-mailed me because he was excited about it being in The Canary... must be good news!
     
    moosie, ahmo, MEMum and 21 others like this.
  6. A.B.

    A.B. Senior Member

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    The PACE story sounds like some crackpot conspiracy, but it's true!

    A David vs Goliath scenario.
    Researchers that manipulate the study protocol.
    A smear campaign to silence critics.
    The science media center was an accomplice.
    A prestigious journal overlooks all the problems with the study.
    Sinister conflicts of interest in the background.
    A legal battle with false accusations and dirty tricks.
    The truth comes out... and widely held beliefs about treatment effectiveness turn out to be false.
     
    Last edited: Oct 2, 2016
    moosie, ahmo, MEMum and 19 others like this.
  7. Esther12

    Esther12 Senior Member

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    I think that has been part of the problem for us. We need to make it sound less bad than it is before anyone will believe us!
     
    moosie, MEMum, Mrs Sowester and 11 others like this.
  8. Tom Kindlon

    Tom Kindlon Senior Member

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    moosie, MEMum, Esther12 and 5 others like this.
  9. Tom Kindlon

    Tom Kindlon Senior Member

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    MEMum, mango, Comet and 3 others like this.
  10. worldbackwards

    worldbackwards A unique snowflake

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    It's kind of why I wish this piece was somewhere other than The Canary. They'll believe this stuff anyway, it pushes all their buttons - conspiracy; government corruption; dodgy corporate interests. It's almost wasted on them.
     
    BurnA likes this.
  11. Esther12

    Esther12 Senior Member

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    Maybe they're on to something?

    Who knows how many times we've wrongly dismissed other people's concerns for being too conspiratorial sounding?
     
    BurnA, TiredSam, Valentijn and 2 others like this.
  12. CFS_for_19_years

    CFS_for_19_years Hoarder of biscuits

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    MEMum, TiredSam and Luther Blissett like this.
  13. worldbackwards

    worldbackwards A unique snowflake

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    Yes, but it isn't the point. The point is that it doesn't make our message any more credible than it is already.
     
  14. Skippa

    Skippa Senior Member

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    I can't wait 'til the movie comes out!
     
    Cornishbird, MEMum, Yogi and 2 others like this.
  15. worldbackwards

    worldbackwards A unique snowflake

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    Sue Marsh on our side. Now that calls for credibility talk of a whole different order... :)
     
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  16. Solstice

    Solstice Senior Member

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    Sue Marsh writes for the guardian or something?
     
  17. CFS_for_19_years

    CFS_for_19_years Hoarder of biscuits

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    Some probably know a lot more about her than I do, but I see that she has 11K Twitter followers and a blog at https://diaryofabenefitscrounger.blogspot.com. She describes herself : "Occupation: Sick Person! I have a rare form of Crohn's Disease. I was diagnosed 21 years ago.[....]I have children that I often can't look after and a husband who often looks after me. Our lives are disrupted daily by the misery of a chronic condition."
     
    MEMum likes this.
  18. slysaint

    slysaint Senior Member

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    Yes but she now works for Maximus (DWP WCA) and is on 75K a year.
     
    Countrygirl, flybro, MEMum and 5 others like this.
  19. Snow Leopard

    Snow Leopard Hibernating

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    I'm currently up to 1207 times.
     
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  20. worldbackwards

    worldbackwards A unique snowflake

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    Pssst! My secret source actually says it's 1936. :)
     
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