Since this thread and this section of the forum is to keep the patient community informed on XMRV, I will post some information on here that has just surfaced which is now coming to light. This information was known to some a few months ago but the evolution of time and additional research has highlighted this fact that cannot be ignored. I don't like being the bearer of bad news. I also believe that it does a disservice among the patient community by giving patients a false sense of hope without any foundation of scientific data/proof or research. To make connections of XMRV with other associated diseases and now HGRV as causing ME or other associated diseases without proper scrutiny by the scientific community on their proof/data or research, is outside normal behavior on the part of the institution and the scientists involved. I believe that the WPI and Mikovits should apologize to the patient community. There is information and an accusation made by another blogger that is indicating fraud at the worse or sloppiness at the very least. This information was given to her by an unknown source. I do not know the source of the information but heard about it circulating among several retrovirologists. I don't like linking to posts where bloggers have a certain prejudicial and adverse view to xmrv but this cannot be ignored and if the moderators wish to take the link down that is fine with me. At the same time this is not a conspiracy, innuendos or unsubstantiated rumors but indeed a scientist who wish to disseminate the information through Erv's blog. I do not know who the person is so don't ask me. I just know some of the background information. Since Mikovits stated after the BWG study that there is no viable assay to detect XMRV within blood,..."The conclusion of the Blood Working Group was that we don't have a reproducible assay to detect XMRVs in the blood"... I hope that the WPI will refund the costs for the lab costs for patients who submitted their blood samples for testing. http://scienceblogs.com/erv/2011/09/xmrv_and_chronic_fatigue_syndr_29.php I will also state that this illness may be caused by another retrovirus or HGRV but without any scientific data to back up this speculation, I could not emphatically with good conscience state this as a fact. You can attack the data and information but I will not tolerate personal attacks as per forum rules based on the explosiveness of this information.