Professor & patients' paper on the solvable biological challenge of ME/CFS: reader-friendly version
Simon McGrath provides a patient-friendly version of a peer-reviewed paper which highlights some of the most promising biomedical research on ME/CFS ...
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The Real Story About Chronic Fatigue Syndrome (on physical therapy/physiotherapy)

Discussion in 'General ME/CFS News' started by Dolphin, Sep 10, 2017.

  1. Dolphin

    Dolphin Senior Member

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    A sympathetic article. Though I am still unsure whether physical therapy should be recommended at this stage of the knowledge about ME/CFS.
     
  2. Dolphin

    Dolphin Senior Member

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    Apart from listening to patients, and letting them space out their activities, it doesn't give that much information that I recall on what physical therapists/physiotherapists should be recommending.

    Exercising under the anaerobic threshold is mentioned at one stage.
     
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  3. Dolphin

    Dolphin Senior Member

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    One point of disagreement in the article:
    I'm not sure which specific research by Meeus and Nijs
     
  4. alex3619

    alex3619 Senior Member

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    "suggests that a "mid-range" of exercise is best with no exercise or too much exercise both making the patient's condition worse." Doesn't pacing qualify as that?
     
  5. Dolphin

    Dolphin Senior Member

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    I'm not sure what research of theirs there is showing no exercise is bad.
     
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  6. Esther12

    Esther12 Senior Member

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    I wasn't really keen on this. It did mention criticism of PACE though, so that's +100.
     
  7. alex3619

    alex3619 Senior Member

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    Any paper that discusses PACE as problematic plus our actually measured and measurable exercise problems is at least on a better path even if it is not perfect.
     
  8. Effi

    Effi Senior Member

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    world-leading authorities in the field of neuroscience and people with chronic fatigue syndrome??? What a load of $$$. They are world-leading proponents of central sensitization (e.g. Canada has them to thank for it), but whenever there's cash to gain in biomed research, they'll happily jump over the fence for the duration of the trial, then jump right back over to talk about kinesiophobia and 'pain without tissue damage is merely perceived pain'. The impression they give me is that their main purpose is to keep their research team afloat. Not the greatest motivation for research, now is it?
     
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  9. Barry53

    Barry53 Senior Member

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    Trouble is, that phraseology is so very woolly that GET proponents might convince the innocently uninformed that it fits with their ideas too.
     
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  10. alex3619

    alex3619 Senior Member

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    Quite. I should have added a sarcasm alert.
     
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  11. Barry53

    Barry53 Senior Member

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    Sorry, I was a bit slow :)
     
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  12. alex3619

    alex3619 Senior Member

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    Just blame ME. It makes everyone slow.
     
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  13. Dolphin

    Dolphin Senior Member

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    Valentijn likes this.
  14. Orla

    Orla Senior Member

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    This article came up on my facebook. I read the beginning of it and thought it was quite good but then I got to what felt like a sales-pitch and stopped. I am going to read the critique now to see what someone else thought.
     

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