Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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The quarter centenarians!

Discussion in 'General ME/CFS Discussion' started by Kenny Banya, Dec 29, 2016.

  1. Kenny Banya

    Kenny Banya Senior Member

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    Shortly, I will become a part of an exclusive group known as the quarter centenarians.
    Post in here if you're just as ace as me.

    As for everyone else, be grateful for your CFS overlords.
     
  2. alex3619

    alex3619 Senior Member

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    You mean sick longer than 25 years? There are lots of us. I wish it were an exclusive group, because with today's science most patients will join it in time. I hope that soon many will be leaving the club due to recovery ... the science is advancing fast.

    This might be confused with the 25% group, who are the sickest patients. Its really sad that some might qualify for both groups.
     
  3. Tom Kindlon

    Tom Kindlon Senior Member

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    27 years 10 months for me.
     
  4. Kenny Banya

    Kenny Banya Senior Member

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    I don't set the bar so low....
     
  5. Little Bluestem

    Little Bluestem Senescent on the Illinois Prairie ❀❤✿Ƹ̵̡Ӝ̵̨̄Ʒ✿❤❀

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    I'm a quarter centenarian (30 years, 9 months), but not a member of the 25% group (thank Heavens!).
     
  6. Sea

    Sea Senior Member

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    30 years and 6 months
     
  7. valentinelynx

    valentinelynx Senior Member

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    Only coming up on 24 years... just a baby!
     
  8. CFS_for_19_years

    CFS_for_19_years คภภเє ɠรค๓թєl

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    26 years, one month, and two days. (I should have made my username CFS_since_1990.)
     
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  9. Little Bluestem

    Little Bluestem Senescent on the Illinois Prairie ❀❤✿Ƹ̵̡Ӝ̵̨̄Ʒ✿❤❀

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    Maybe if you asked really nicely they would let you change it.
     
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  10. Countrygirl

    Countrygirl ME is not MUS

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    45 year years...................34 severe. Do we have a half-century club here?
     
  11. Little Bluestem

    Little Bluestem Senescent on the Illinois Prairie ❀❤✿Ƹ̵̡Ӝ̵̨̄Ʒ✿❤❀

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    No! No! We do not want a half-century club. :aghhh: I demand that you recover within the next 5 years. After all, I hear it is all in our heads. :p
     
  12. Daisymay

    Daisymay Senior Member

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    37 years in February.

    It started with glandular fever (ie mono) then later that year another severe viral infection, the enterovirus Coxcaskie B3. Mind you, I had had bacillary dysentery some years previous to that whilst travelling abroad which had really pulled me down and I'm sure affected my microbiome.

    My husband and one sister in law will also have had ME for 37 years this year.

    In spite of being ill so long, I am still hopeful that there will be some treatments, maybe that is totally naive!?
     
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