Julie Rehmeyer's 'Through the Shadowlands'
Writer Never Give Up talks about Julie Rehmeyer's new book "Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand" and shares an interview with Julie ...
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The quality of life of persons with chronic fatigue syndrome (Anderson & Ferrans, 1997)

Discussion in 'Latest ME/CFS Research' started by Dolphin, Nov 8, 2014.

  1. Dolphin

    Dolphin Senior Member

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    A very nice paper, for anyone who has access to the full text

     
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  2. Dolphin

    Dolphin Senior Member

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    30 is the best score, 0 the worst.

    QoL in CFS versus other conditions.png
     
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  3. Dolphin

    Dolphin Senior Member

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    Figure 1.
    Left-hand side is from 110 surveys. Right-hand side from 30 interviews.
    Figure 1 Anderson & Ferrans 1997.png
     
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  4. Dolphin

    Dolphin Senior Member

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    Last edited: Nov 8, 2014
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  5. Dolphin

    Dolphin Senior Member

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  6. Dolphin

    Dolphin Senior Member

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  7. Dolphin

    Dolphin Senior Member

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  8. Dolphin

    Dolphin Senior Member

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  9. Dolphin

    Dolphin Senior Member

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  10. Dolphin

    Dolphin Senior Member

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  11. Dolphin

    Dolphin Senior Member

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  12. Simon

    Simon

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    These finding resonate with me like no other I've read. I think it could be useful evidence in campaigns to show the impact of the illness.

    Thanks for digging out and posting.
     
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  13. Dolphin

    Dolphin Senior Member

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  14. Dolphin

    Dolphin Senior Member

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    Thanks. And I haven't posted everything.

    Thanks are due to all the people who filled in the questionnaire, the 30 interviewees and the researchers.
     
  15. Dolphin

    Dolphin Senior Member

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    .
     
  16. Dolphin

    Dolphin Senior Member

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  17. Dolphin

    Dolphin Senior Member

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  18. Denise

    Denise Senior Member

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  19. Dolphin

    Dolphin Senior Member

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    Looks like the questionnaire they used, or close to it (extract mentions 34 (cf. 36) aspects of life - maybe there are two dummy questions or something)

     
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  20. SDSue

    SDSue Southeast

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    Thank for posting this, @Dolphin. Having the losses categorized in one place really hits home. As hard as it is to see, this is important information.
     
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