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The Psychiatrist's Role In Treating Unseen Diseases

Discussion in 'General ME/CFS News' started by Never Give Up, Sep 29, 2015.

  1. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    The above titled article showed up on Psychiatry Advisor today, http://www.psychiatryadvisor.com/pr...1&spJobID=622158062&spReportId=NjIyMTU4MDYyS0

    Eleanore Stein does a good job parsing out the differences between psychiatric diseases and normal responses to diseases, she even spells out what PWME are dealing with and provides a roadmap to help.

    “They are struggling with existential issues and grief. Fear is common because of the uncertainty associated with the course of the illness. Stigma leads to a sense of isolation.”

    She also discusses the problem with the new DSM-5 diagnosis of Somatic Symptom Disorder,

    Based on DSM-5 criteria, 15% of patients with cancer or heart disease and 26% of those with irritable bowel syndrome (IBS) or fibromyalgia qualify for a diagnosis of somatic symptoms disorder.7 “This is unacceptably high,” said Stein.

    I'm pretty sure she, herself, has ME/CFS. At any rate, she's a great advocate.
     
  2. alex3619

    alex3619 Senior Member

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    I met Ellie Stein at an ME/CFS conference in 1999, Sydney, Australia. I still have a lasting and positive impression of her. She has been involved in this for the long haul, and had ongoing discussions with many of the experts, looking for answers. She has also done a lot with pacing therapy, and I think has a booklet on how to pace.

    In the email version of this there is an error in that its claimed that ME is the name of choice from the IOM. It isn't. This is also in the article.
     
  3. Misfit Toy

    Misfit Toy Senior Member

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    When I applied for Social Security Disability....you know who won it for me in a small court room? The psychiatrist! He looked at all of my labs, my thyroid, my adrenal test, Endo surgeries and said...."Of course she's depressed, she's physically sick..anyone can see that." Kazam! I won SSD and for CFS. I've had great help from psychiatrists and my therapist. They are my advocates and have assured my docs and myself at times that I'm not mentally ill and that I'm sick and dealing with too much.

    That psychiatrist will forever hold a place in my heart. Validation is a wonderful thing.
     
    Last edited: Sep 30, 2015
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  4. alex3619

    alex3619 Senior Member

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    Wow. :) The system actually worked the way its supposed to! :eek:
     
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  5. Snookum96

    Snookum96 Senior Member

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    I've found my psychiatrist has been the most helpful with this. He actually listens to me when I tell him about my symptoms.
    He's done more relevant bloodwork too, he thought to test things like mercury and zinc, which no other doctor did.

    He also suggested some supplements, he's not big on loading me up with prescriptions which I like. He even wants to see my MRI result because he's curious why someone formerly so fit and active could end up like this.

    He also knows me well and knows that just because I have a history of depression doesn't mean I'm hysterical or that depression is causing all this weirdness.
     
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  6. ScottTriGuy

    ScottTriGuy Stop the harm. Start the research and treatment.

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    The exception that proves the rule.
     
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  7. alex3619

    alex3619 Senior Member

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    Komaroff ran an experiment a few years ago with, I think, spectral coherence EEG. It showed that ME and depression, in women at least (it was not calibrated for men) is differentiable using this cutting edge technology.
     
  8. Snookum96

    Snookum96 Senior Member

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    That would be an amazing tool to be able to use. I've no idea what a spectral coherence eeg is but I'll look it up. Providing "proof" to doctors would be a big help.
     
  9. alex3619

    alex3619 Senior Member

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    You can show them the paper, but most doctors have probably never heard of it, and I have no idea how prevalent the technology is. This was done, I think, at Harvard Medical School.
     
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  10. Dolphin

    Dolphin Senior Member

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    Here's a booklet from Dr Eleanor Stein from 2005. I can't recall the details except I thought it was quite good



    Direct link to booklet: http://emerge.org.au/wp-content/uploads/2015/01/Clinical-Guidelines-for-Psychiatrists.pdf
     

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