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Love it, hate it, good story, bad story... the media are going to keep reporting on ME/CFS no matter what. But isn’t it time that we saw that coverage as an opportunity?
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The PRIME project: developing a patient evidence-base

Discussion in 'Latest ME/CFS Research' started by Dolphin, Feb 22, 2014.

  1. Dolphin

    Dolphin Senior Member

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    I gave each sentence its own paragraph
     
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  2. Dolphin

    Dolphin Senior Member

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    This paper had very little data from patients. This was about the only thing*:


    The rest was just explaining what was done and saying why it was useful. So for most people, I imagine it wouldn't be a good use of your time to read it.

    The data (extracts from interviews) itself is at: http://www.prime-cfs.org.

    *There is also the following, which I don't have
     
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  3. barbc56

    barbc56 Senior Member

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    I agree. It looks like this study(?) is certainly limited but they do say that further research is needed. I need to read all of the above as I just scanned it.

    Lots of kudos for breaking up the paragraphs. It makes reading much easier!:thumbsup::thumbsup:

    Barb
     
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  4. Dolphin

    Dolphin Senior Member

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    Thanks.

    Just to be clear: I'm not saying the study itself is not of much value, just that the paper just talks about the process and gives virtually no info on what the patients actually said. That can be got from the site itself: http://www.prime-cfs.org/.
     
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