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The planning, implementation and publication of a complex intervention trial CFS: the PACE Trial

Discussion in 'Latest ME/CFS Research' started by Dolphin, Jul 22, 2014.

  1. Dolphin

    Dolphin Senior Member

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    This journal accepts e-letters (which are also considered for publication) so it's an opportunity to challenge the trial. I would think ideally one would need to include at least a couple of references.

    Free full text: http://pb.rcpsych.org/content/early/2014/07/14/pb.bp.113.045005.abstract

     
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  2. Esther12

    Esther12 Senior Member

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    Ho-ho.

    Whole paper seems to say very little really.
     
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  3. Dolphin

    Dolphin Senior Member

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    Yes, except try to claim that the results are clear (success for CBT and GET in various ways) and then have a few swipes at dissenters/people who looked for more data.
     
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  4. Esther12

    Esther12 Senior Member

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    No mention of their decision to drop actometers, problems with relying on questionnaires as outcome measures, their 'recovery' criteria changes, etc.
     
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  5. Dolphin

    Dolphin Senior Member

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    Plenty of material for responders to get their teeth into.
     
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  6. Bob

    Bob

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    CBT & GET were not more effective than SMC. The abstract contains only three sentences, and one of them (quoted) is incorrect. So that doesn't hold out much hope for the rest of the paper! (I haven't read it yet.)
     
    Last edited: Oct 22, 2015
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  7. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    I think they're relying on the adage that, if you say something often enough, people will believe it.
     
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  8. Bob

    Bob

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    I think this is new (bolded):
     
  9. lnester7

    lnester7 Seven

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    Maybe some poeple can vonluteer that understand this better (statistical analisys and such stuff). I think this is a great opportunity for Advocacy. I have terrible english if not I would write.
    My biggest issue is realted to the raw data release, and the mistery around it. They can scratch all the names they want.
     
  10. Dolphin

    Dolphin Senior Member

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    (In case anyone missed it)
    The journalist, David Tuller DrPH, has today posted a substantial piece on the PACE Trial:

    TRIAL BY ERROR: The Troubling Case of the PACE Chronic Fatigue Syndrome Study
    http://www.virology.ws/2015/10/21/trial-by-error-i/

    There's an introduction and summary at the start if you don't want to take on the whole thing.

    It's being discussed in this PR thread:
    http://forums.phoenixrising.me/inde...he-pace-chronic-fatigue-syndrome-study.40664/

    ME Network have also posted their own summary piece:
    http://www.meaction.net/2015/10/21/david-tuller-tears-apart-pace-trial/
     
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