1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
California 2014: IACFS/ME Day Four: Translating Science into Clinical Care: 23 March 2014
It is Day Four and the final conference session from San Francisco. In this review we hear from Searcher about the neurosciences session, and PET and EEG analysis, then a study on cognitive functioning, followed by a debate on the revised 2014 IACFS/ME Primer, and then we wrap-up the...
Discuss the article on the Forums.

The PACE Trial – The Results

Discussion in 'General ME/CFS News' started by Bob, Aug 17, 2012.

  1. PhoenixDown

    PhoenixDown Senior Member

    Messages:
    257
    Likes:
    229
    UK
    Right, they've mentioned the pros but what they forgot to mention is the cons, the huge damage their ideology causes, the hammer that destroys patient's support networks by misleading them into thinking the patient can not get permanently worse, can not suffer from exercise, must not be helped in to a "sick role", has an unfounded fear of exercise, that objective abnormalities are only due to de-conditioning or that abnormalities are otherwise benign, etc, etc.

    Once you factor that danger, then the 10% -15% isn't really worth it, if CBT/GET were a drug, they were be banned due to side effects.
  2. Bob

    Bob

    Messages:
    6,318
    Likes:
    6,614
    England, UK
    Yes, all those false theories are destroyed by the PACE Trial results.
    And we don't yet know the 'deterioration rates', which might be equal to, or worse than, the improvement rates.
  3. Bob

    Bob

    Messages:
    6,318
    Likes:
    6,614
    England, UK
    Breakthrough magazine is online now.
    See the Autumn 2012 issue, page 14, first column, under 'Netherlands':
    http://www.meresearch.org.uk/information/breakthrough/index.html
  4. Valentijn

    Valentijn Activity Level: 3

    Messages:
    4,783
    Likes:
    5,108
    Amersfoort, Netherlands
    A couple of the researchers have Revant.nl emails, which does both physical and mental rehabilitation. So at best they subscribe to the deconditioning theory, though I'm sure they think counseling for false illness beliefs is also necessary. They guarantee that they will get people with pain, FM, CF, fatigue, burnout, and mental health problems back to work in 8 weeks and all fixed up in 15 weeks :cautious:

    From the protocol:
    So the primary outcomes are focused on questionnaires again, and physical activity is going to get buried if it gets mentioned at all.

    They're also using the CDC definition of CFS, so ME is optional.

    More of the usual bullshit, assuming that by "social support" they mean putting social pressure on the patient to change their behavior and cognitions.

See more popular forum discussions.

Share This Page