1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Part 2: Brain Cells Making us Sick? Messed up microglia could be driving symptoms
Simon McGrath looks at theories that microglia, the brain's immune cells, might be overactive and driving the symptoms of ME/CFS and fibromyalgia.
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The PACE Trial – The Results

Discussion in 'General ME/CFS News' started by Bob, Aug 17, 2012.

  1. PhoenixDown

    PhoenixDown Senior Member

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    Right, they've mentioned the pros but what they forgot to mention is the cons, the huge damage their ideology causes, the hammer that destroys patient's support networks by misleading them into thinking the patient can not get permanently worse, can not suffer from exercise, must not be helped in to a "sick role", has an unfounded fear of exercise, that objective abnormalities are only due to de-conditioning or that abnormalities are otherwise benign, etc, etc.

    Once you factor that danger, then the 10% -15% isn't really worth it, if CBT/GET were a drug, they were be banned due to side effects.
  2. Bob

    Bob

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    Yes, all those false theories are destroyed by the PACE Trial results.
    And we don't yet know the 'deterioration rates', which might be equal to, or worse than, the improvement rates.
  3. Bob

    Bob

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    Breakthrough magazine is online now.
    See the Autumn 2012 issue, page 14, first column, under 'Netherlands':
    http://www.meresearch.org.uk/information/breakthrough/index.html
  4. Valentijn

    Valentijn Activity Level: 3

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    A couple of the researchers have Revant.nl emails, which does both physical and mental rehabilitation. So at best they subscribe to the deconditioning theory, though I'm sure they think counseling for false illness beliefs is also necessary. They guarantee that they will get people with pain, FM, CF, fatigue, burnout, and mental health problems back to work in 8 weeks and all fixed up in 15 weeks :cautious:

    From the protocol:
    So the primary outcomes are focused on questionnaires again, and physical activity is going to get buried if it gets mentioned at all.

    They're also using the CDC definition of CFS, so ME is optional.

    More of the usual bullshit, assuming that by "social support" they mean putting social pressure on the patient to change their behavior and cognitions.

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