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by Mindy Kitei for CFS Central
Saturday, December 22, 2012
“At FDA, Unger...said in her decision that more needs to be known about this 'subset' of ME patients who respond to Ampligen.”
Saturday, December 22, 2012
“At FDA, Unger...said in her decision that more needs to be known about this 'subset' of ME patients who respond to Ampligen.”
Read more: http://www.cfscentral.com/2012/12/the-oxford-definition-its-baaack.htmlA couple of weeks ago I asked CDC's Unger via email why is CDC using the antiquated Oxford* definition in its partnership with HRSA (Health Resources and Services Administration), along with Fukuda** and Canadian Consensus Criteria*** in its continuing education courses? The Oxford definition requires only fatigue, unlike the other definitions of ME, which require immune, neurologic and autonomic symptoms.
I also asked Unger:
- For most CFS-literate physicians and patients, using all three definitions is a problem... According to most CFS-literate physicians, the Canadian Consensus Criteria (CCC) is the most accurate and thorough of these three definitions....
- The CCC definition describes the illness that most patients and CFS-literate physicians understand to be CFS. Given that using multiple definitions results in confusion and heterogeneous populations, why not make this critical change and use only CCC?