1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Dr. Kerr, I presume?
Clark Ellis brings us a rare interview with British researcher Dr. Jonathan Kerr who is now living in Colombia.
Discuss the article on the Forums.

The "Obama Promise" Fulfilled: Obama Requests NIH Elevate Priority of Chronic Fatigue Syndrome

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Aug 17, 2012.

  1. Phoenix Rising Team

    Phoenix Rising Team

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    View the Post on the Blog
     
    L'engle, Crux, xchocoholic and 3 others like this.
  2. peggy-sue

    peggy-sue

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    Scotland
    Wow - respect!
     
    SarahLaBelle and L'engle like this.
  3. jeffrez

    jeffrez Senior Member

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    I love that guy! So grateful to Millers for speaking out. They deserve our thanks and congratulations!
     
    SarahLaBelle, SOC, camas and 2 others like this.
  4. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Great! Sending the email.

    Thanks Courtney for having the courage to initiate and follow up on this, and to Cort for making it easy for us to send this email.

    Note: You might want to remove the italics and highlighting when you paste this into your email.

    Sushi
     
    CJB likes this.
  5. Valentijn

    Valentijn Activity Level: 3

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    Amazing! I am and was a big Obama supporter, but I assumed the "I'll look into it" was the typical political brush off. I'm just speechless. And in a good way for a change!
     
    CJB and jeffrez like this.
  6. Enid

    Enid Senior Member

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    Great news Cort. With research picking up and now for you in the US what could be better news.
     
    CJB likes this.
  7. CJB

    CJB Senior Member

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    Wow.
     
  8. Dreambirdie

    Dreambirdie work in progress

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    Yeah, really WOW.
     
  9. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    To members not in the US: I think it might be great if you also wanted to send this email, amending it to fit your situation, indicating something like that the world notes what is happening in the US--even if it doesn't directly affect you.

    Sushi
     
    SOC, Blue and CJB like this.
  10. Rrrr

    Rrrr Senior Member

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    thank you to the millers for all their work. please let this be a turning point in our decades of suffering.
     
    L'engle likes this.
  11. Merry

    Merry Senior Member

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    Incredible, wonderful. Thank you, Courtney and Bob Miller. Thank you, Nancy Ann DeParle. Thank you, President Obama. (Of course I'll send an email, too.)

    Oh, and thanks, Cort for the great news.
     
    SarahLaBelle, L'engle and CJB like this.
  12. Simon

    Simon

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    Awesome! That's great news, and Obama sounds like he means it.
    You can imagine that focusing minds at the NIH, though I guess it very much depends on the election result. Would be great if someone could get Mitt Romney to make the same pledge to ensure the heat stays on regardless.
     
    CJB likes this.
  13. Nielk

    Nielk

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    My thanks and utmost respect to the Millers!

    This is advocacy in action. What an accomplishment !

    Thank you.
     
    WillowJ and Ember like this.
  14. Sasha

    Sasha Fine, thank you

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    I agree - I've amended the text as follows, please feel free to copy (putting your own nationality in instead where I say "British citizen"):

    I am glad I caught "17 people worldwide" rather than "17 million people worldwide" before I sent it! :whistle:
     
    SOC, Merry and CJB like this.
  15. Dreambirdie

    Dreambirdie work in progress

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    WillowJ and Crux like this.
  16. Wally

    Wally Senior Member

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    Thank you for sharing this information with the MECFS Community and many thanks to Courtney and Robert Miller.

    The drum beat seems to be getting louder and louder from many different fronts. The door is cracked open for voices to be heard from all over the globe. Let's keep the beat going and let them see the sheer volume of people throughout the world who have been effected by this illness. Patients, family, friends and the medical/research community - it will take only a couple of minutes of your time to let your presence be known. The wave has been started, but it needs the crowd to show up for the greatest impact to be felt!
     
    camas and Nielk like this.
  17. Fatima

    Fatima

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    Wonderful news! Many thanks to Courtney and Robert and to your president for living up to his promise!
     
    Merry likes this.
  18. camas

    camas Senior Member

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    Well, this is a first. Thank you e-mail sent...
     
    ggingues likes this.
  19. SpecialK82

    SpecialK82 Senior Member

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    Absolutely floored!! I have no words. When has a politician ever followed through........
     
    SarahLaBelle likes this.
  20. Tally

    Tally Senior Member

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    This brings hope in better tomorrow. I'm not an American, but this will surely affect us all
     
    SarahLaBelle and Merry like this.

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