The power and pitfalls of omics part 2: epigenomics, transcriptomics and ME/CFS
Simon McGrath concludes his blog about the remarkable Prof George Davey Smith's smart ideas for understanding diseases, which may soon be applied to ME/CFS.
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The #MEAction Network - post from Facebook.

Discussion in 'General ME/CFS News' started by aimossy, Feb 19, 2015.

  1. aimossy

    aimossy Senior Member

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    The link to the post: https://www.facebook.com/MEActNet?fref=ts

    ME PATIENTS AND HEALTHY ALLIES!

    We can't wait to reveal the work we have been doing on The ME Action Network. Here is sneak peak of what we are hoping to unveil this spring:

    – A professional brand concept that can be used by activists around the world...
    – Tools for organizing events, petitions, and fundraising that help make it easier for activists to self-organize and scale their projects
    – A directory of volunteers to help match projects with people who have specific skills
    – Tools for contacting or petitioning members of Congress (US) and Parliament (UK) – (we hope to expand to other countries as well!)
    – Printed training modules as well as virtual workshops that draw upon the skills of professional organizers and veteran activists from all around the social issue landscape
    As we near the end of our branding process, we are looking to build a *hybrid* team of ME patients and healthy allies who can help us get the platform up and running.

    We have two pressing needs right now:

    1) Social Media Lead- This role involves sharing important ME news and ME Action Network updates on social media platforms such as Twitter and Facebook. Ideally this position would be filled by a person with ME who has the ability to dedicate 5-10 hours a week to helping share vital information with the community and growing the community.

    2) Project Management/tech Lead- We are building a platform that will help people with ME and our allies to work together on achieving health equality for ME patients. This role involves communicating with technical partners such as graphic designers and technical companies and helping with the implementation of the platform. Experience with implementing software would be very helpful. Ideally this person would be a healthy ally or a person with ME who can commit to ~10 hours a week of technical work, including occasional meetings over Skype.

    We are also looking for volunteers with diverse skills in community organizing, media, fundraising, strategic planning, etc. to help us lead the charge.

    If you are interested in participating, please email: meactionassistant@gmail.com
     
    rosie26 and Bob like this.

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