Jen Brea launches mass-advocacy platform — #MEAction goes live!
Jen Brea is a phenomenon. After working as a freelance writer in China and Africa, she enrolled for a PhD at Harvard in political science but, four years ago, got sick. She had a fever that lasted ten days.
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The ME (ICC) vs CFS (Fukuda) Diagnosis Poll

Discussion in 'Diagnostic Guidelines and Laboratory Testing' started by Cort, Sep 13, 2011.

?

I Meet the Criteria For

  1. CFS according to the Fukuda Definition (1994) but not the ICC for ME

    2 vote(s)
    2.4%
  2. ME according to the ICC for ME (2011) but not the Fukuda def for CFS

    7 vote(s)
    8.3%
  3. I meet the criteria for both the ICC and the Fukuda definition

    74 vote(s)
    88.1%
  4. I don't meet either definition

    1 vote(s)
    1.2%
  1. Sing

    Sing Senior Member

    Messages:
    1,551
    Likes:
    1,052
    New England
    Cort, will this poll find its way to researchers? I really want them to know what our patient group responses are. I realize this won't count as a scientific study, but as a strong indicator for which way to go with the research, I feel it makes a very valuable contribution.
     
  2. Ember

    Ember Senior Member

    Messages:
    2,055
    Likes:
    2,274
    I think this poll is very misleading. Category 1 patients, "CFS according to the Fukuda Definition (1994) but not the ICC for ME," are hardly represented. Most of them are probably too high-functioning to be part of this community.
     

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