Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Mar 13, 2013.
Hey, you gave me a chuckle.
Only someone who actually is a fellow sufferer could have written this article; thank you, Carol. P.S. If anyone is in Santa Barbara, see Jeff Polito, M.D. (Patterson). It's not that he knows alot, but HE CARES AND HE LISTENS AND HE TRIES AND HE ADVOCATES. He is wonderful.
It is just too much to ask of each on of us, sick as we are, to repeatedly try to counteract the willful ignorance of the people in our lives. This illness is far too complex to easily explain. And we shouldn't have to. There are literally hundreds of peer reviewed scientifically controlled studies finding serious abnormalities. It is no longer debatable.
This is why those responsible for educating the public on health issues need to be held fully accountable. Their silence is literally killing some of us, and the stress alone is a health hazard. (A recent study shows that people with ME/CFS develop fevers under stress.)
If anyone would like to add their voice in support of a petition to make this happen, there is a one question poll at the beginning of the thread "Our Stories of Stigma and Support". It would be great to have your input. Thanks.
Great article on this awful situation - thanks Carol. Quite complex history - untrained Docs where their simple testing reveals nothing so it must be "all in your mind", and non professionals likewise looking for a single name not a list of symptoms - they reinforce each other.
You can also try a Google Site Search
Separate names with a comma.