1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
ME/CFS and the Magic of the Canine Factor
There's been plenty of research indicating that having pets is good for your health. I never really noticed any particular benefits to having cats, though that may have had more to do with my cats. They've been fairly indifferent to my presence and we've shared a live-and-let-live...
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The ME/CFS Pocket Money Research Fund

Discussion in 'Action Alerts and Advocacy' started by Dolphin, Nov 26, 2009.

  1. Dolphin

    Dolphin Senior Member

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    From: Dan Moricoli

    (Please re-post)

    If nothing else, we have learned that our governmental agencies will not
    soon provide the money required for desperately needed research consistent
    to the prevalence of our disease. We also know that it can take a year or
    more for traditional funding sources to go through the grant writing and
    acceptance procedures before such research can begin.

    Working together, we can dramatically increase ME/CFS research to more
    quickly ease the suffering we endure. This is precisely what the ME/CFS
    Pocket Money Research Fund (www.PocketMoneyFund.org) is designed to do.

    It's a fund which seeks to unite we who are isolated by our disease. We
    whose needs have been ignored by all but a few of our physicians,
    governmental agencies and far too many of our family and friends. We, who
    because of our illness, can barely, if at all, work to provide for ourselves
    and our families.

    We must, in spite of our reduced financial capacity, dig deeper and
    sacrifice a little more, to help ourselves.

    We can, however, take heart in our numbers.

    The most commonly accepted prevalence rate for ME/CFS used by researchers and the IACFS is 0.42% of the general population. Applied to just Australia, Canada, Europe, New Zealand and the United States that's over 5,000,000 afflicted individuals. Sadly, less than one in five of us has been
    diagnosed. However, if we 853,000 who know we have the disease join together in common cause, we have real financial strength.

    If each of us were to donate just the local equivalent of $10 to the ME/CFS
    Pocket Money Research Fund, $8,534,010 would be raised.

    And, if we push just a little harder . . . and each of us get just one
    friend or relative to contribute a like amount, $17,068,020 would be raised.
    "That's real money which can make a real difference in a big hurry"
    according to Dr. Nancy Klimas, M.D.

    Whatever pocket money you can bring yourself to spare, in whatever currency, will help us help ourselves. Whatever effort, you can make to urge others to join us, will help us help ourselves.

    Your contributions to the fund will also bring us closer to forming not just
    a worldwide community, but a growing worldwide presence whose numbers our
    governmental agencies will soon no longer be able to ignore.

    Please, take a moment right now . . . and look into your pocket or purse.
    Count out the money and consider how much you can spare to help yourself
    overcome the ravages of our disease you endure. Then make a donation via
    PayPal to the ME/CFS Pocket Money Fund at:
    https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=8908224

    <https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=8908224>





    If you prefer to write a check in your local currency, make the check
    payable to The ME/CFS Pocket Money Research Fund and mail it to: The ME/CFS Pocket Money Fund, c/o Seacoast National Bank, 3001 PGA Boulevard, Palm Beach Gardens, Florida 33410 USA

    All donors are individually recognized by country on the fund's website. To
    learn more about the fund and how your donation will be used, and by whom,
    go to www.pocketmoneyfund.org.

    You can also help by forwarding this message to everyone you know who has
    the your disease or may be in a position to help. To learn more about what
    else you can do to support the fund in your local area, check out, and sign
    up for, the Ambassador program(http://www.pocketmoneyfund.org/ambassador.php).

    You can also take one other very important action to help us help ourselves
    . . . forward this email to every organization or website you know of and/or
    subscribe to and ask them to post the fully activated version of this image
    on their website. Those that advise us that they have done so, will be
    recognized as Sponsors on the fund's website.

    The computer code needed to post the fully activated 120 X 240 pixel image
    (which can be viewed at www.cfsknowledgecenter.ning.com) Other sizes are
    available upon request.:

    <img
    src="http://www.pocketmoneyfund.org/images/120x240-pocketmoney-banner.png"
    width="120" height="259" border="0" usemap="#Map" />
    <map name="Map" id="Map">
    <area shape="rect" coords="-117,-133,120,192"
    href="https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick
    <https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=983199
    4> &hosted_button_id=9831994" target="_blank" />
    <area shape="rect" coords="0,191,214,333"
    href="http://www.pocketmoneyfund.org" target="_blank" />
    </map>

    Together, we can change the world.

    Dan Moricoli

    email: dmoricoli@cfsknowledgecenter.com
  2. Dolphin

    Dolphin Senior Member

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  3. shrewsbury

    shrewsbury member

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    I agree with Tomk. Cort and Aftermath, while you're thinking of how to reorganize a bit to keep things clear and easy to find (one of the many lovely aspects of the forum to date), maybe you could add, with stickies

    >a thread that is fundraising sites only - no discussion
    >a research thread - no discussion, maybe even with sub-categories even - xmrv, heart, azt.........
    > how tos of advocacy - no discussion - there are a couple existing posts that would be good - how to write to senators, how to advocate effectively, carla-ni's site, probably dreambirdie's list that she attached to her 60 Minutes letter if she agrees

    Know I had other similar ideas, but the fog has swallowed them.

    I'm not sure if it would be best to have these stickies at the top of each appropriate thread or if it would be better to have a sticky section that then has all these subcategories.

    I'll copy this post to the nuts and bolts as I've added to Tom's idea

    islandfinn:)

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