Cort has a very interesting article on the Lights' research. Well worth a read - they seem to be making some exciting progress - and they've just got a $1m grant to take it further. Looks as though they're getting some important pieces of the puzzle.
There's an important opportunity to help - they just need PWME's blood and a questionnaire filled in, so if you can get your local doctor to draw your blood, you can ship it to them, I believe:
If I were in the US I'd be getting my blood drawn and mailed off! I wonder if they want blood from elsewhere.
There's an important opportunity to help - they just need PWME's blood and a questionnaire filled in, so if you can get your local doctor to draw your blood, you can ship it to them, I believe:
Cort on Health Rising said:Thankfully the NIH – in this case NINDS – agrees this is exciting stuff. In 2017 Kathleen Light scored a nice $1,000,000 ROI grant to greatly expand (n=300!) their search for mutations in the mitochondria of immune cells in people with pure FM, ME/CFS and ME/CFS/FM as well as (thankfully) other diseases (migraine, depression).
The most difficult part of any study is not the technical stuff – it’s finding participants. This is a big study and the Lights are looking for patients (particularly the more severely ill) and healthy controls.
Calling “the boss” – his wife (smart man!) – up to the mic to tell the audience when the study was going to happen, Dr. Kathleen Light said the study would begin this month. They’re looking for everybody and would love to get severely ill patients. As far as studies go, it’s an easy gig – one blood draw and an online questionnaire. It involves no exercise. If you can participate please bring along your significant other to serve as a healthy control.
If you can convince your doctor to get the blood draw, you don’t have to be in Salt Lake City to be in the study. Otherwise, the study is only taking place in SLC.
If I were in the US I'd be getting my blood drawn and mailed off! I wonder if they want blood from elsewhere.