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The Lights need your blood! Recruiting now - important study - take part from anywhere (in the US)?

Discussion in 'Active Clinical Studies' started by Sasha, Feb 24, 2017.

  1. Sasha

    Sasha Fine, thank you

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    Cort has a very interesting article on the Lights' research. Well worth a read - they seem to be making some exciting progress - and they've just got a $1m grant to take it further. Looks as though they're getting some important pieces of the puzzle.

    There's an important opportunity to help - they just need PWME's blood and a questionnaire filled in, so if you can get your local doctor to draw your blood, you can ship it to them, I believe:

    If I were in the US I'd be getting my blood drawn and mailed off! I wonder if they want blood from elsewhere.
     
  2. Butydoc

    Butydoc President

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    When my family and I had our blood drawn, it was required to have it drawn at their office.

    Gary
     
  3. Sasha

    Sasha Fine, thank you

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    So you think this might be incorrect info? Is anyone able to contact the Lights to check?
     
  4. Denise

    Denise Senior Member

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    The NIH info about the study says they are looking for 300 people. I would think it'd be difficult to find 300 well characterized people just in Salt Lake City, so I am hoping there is a way people can have samples sent to the Lights.
    But I can't find contact info in Cort's article or on the Bateman Horne site re. the study, the questionnaire, how to provide samples, etc.
    When it is available, could that contact info be highlighted here?
     
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  5. eljefe19

    eljefe19

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    I am in SLC. Following thread for updates.
     
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  6. Sasha

    Sasha Fine, thank you

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    Cort was asked that question on his blog and said this:

     
  7. Sasha

    Sasha Fine, thank you

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    Also, Cort has kindly responded to my question about whether he was sure that people could ship their blood, given what @Butydoc had said. Cort said:

    He's referring to a video in the article.
     
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  8. Demepivo

    Demepivo Dolores Abernathy

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    Jennifer J, RL_sparky and Sasha like this.
  9. Sasha

    Sasha Fine, thank you

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    Another response from Cort to a question about sending blood:

     
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  10. *GG*

    *GG* Senior Member

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    I signed up to be included in studies. They know what state I live in, so we will see what works for them :)

    GG
     
  11. Little Bluestem

    Little Bluestem All Good Things Must Come to an End

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    My doctor is 70 miles away and the local rural hospital is so crummy that I would be afraid to send anything they did. :grumpy:
     
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  12. RYO

    RYO Senior Member

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    I have contacted Dr Light and Dr Bateman. Sampling is not a simple blood draw. They can only perform at study center or possible University research center. Both Dr Lights previously worked at UNC Chapel Hill. They are early in the recruitment process. The process is much easier if you are already a patient at BHC.
     
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  13. eljefe19

    eljefe19

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    @RYO I'm not a patient at BHC but I live in SLC and would really like to get involved with this research. An email to BHC has returned nothing. How do I get in contact with Dr Light?
     
  14. RivkaRivka

    RivkaRivka Senior Member

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    But how do we contact the Lights to have them give our doctors the info?
     
  15. Sasha

    Sasha Fine, thank you

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    Hi, Rivka - our best guess is via this, I think:

     
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  16. RYO

    RYO Senior Member

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    They responded to my email. I think there is phone number on their website as well. They told me process is easier if you are already patient at BHC. There is separate web page to be considered as new patient.
     

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