The Real ME: A Stock Photography Resource for the Media
We’ve all seen them in the news stories about ME/CFS: the guy in a suit at the office, yawning; the beautiful woman sitting at her desk with her immaculate make-up and elegantly coiffed hair, hand to her head and looking slightly pained.
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The IOM Report: The Good, The Bad, and the Absolutely Hideous

Discussion in 'Institute of Medicine (IOM) Government Contract' started by Nielk, Feb 16, 2015.

  1. Nielk


    Blog by Erica Verillo

    It is worthwhile to read in full!
    Mij, SDSue, CantThink and 3 others like this.
  2. Snowdrop

    Snowdrop Rebel without a biscuit

    After explaining why she does not like the new name (SEID) she suggests calling this illness 'Ramsay's Disease'.
    As I've been reading about the IoM report I've started thinking about the name.
    I have always used ME. However, I find this name to be difficult for people to remember.
    I am fully behind calling it Ramsay's Disease. When people hear Parkinson's, Alzheimer's, Huntington's etc they don't always know precisely what the symptoms are but they know they are real and serious illnesses.

    When there is more and better research that would be the time to choose the scientific name for this illness along with subtype nomenclature. Until then I think saying I have Ramsay's or even Ramsay's/ME works for me.
    Mij, CantThink and Tammy like this.

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