Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
Discuss the article on the Forums.

The IOM Report: The Good, The Bad, and the Absolutely Hideous

Discussion in 'Institute of Medicine (IOM) Government Contract' started by Nielk, Feb 16, 2015.

  1. Nielk

    Nielk

    Messages:
    6,877
    Likes:
    10,613
    Blog by Erica Verillo

    http://cfstreatment.blogspot.com/2015/02/the-iom-report-good-bad-and-absolutely.html#comment-form

    excerpts-
    It is worthwhile to read in full!
     
    Mij, SDSue, CantThink and 3 others like this.
  2. Snowdrop

    Snowdrop Rebel without a biscuit

    Messages:
    2,896
    Likes:
    10,089
    After explaining why she does not like the new name (SEID) she suggests calling this illness 'Ramsay's Disease'.
    As I've been reading about the IoM report I've started thinking about the name.
    I have always used ME. However, I find this name to be difficult for people to remember.
    I am fully behind calling it Ramsay's Disease. When people hear Parkinson's, Alzheimer's, Huntington's etc they don't always know precisely what the symptoms are but they know they are real and serious illnesses.

    When there is more and better research that would be the time to choose the scientific name for this illness along with subtype nomenclature. Until then I think saying I have Ramsay's or even Ramsay's/ME works for me.
     
    Mij, CantThink and Tammy like this.

See more popular forum discussions.

Share This Page