The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
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The IOM Report: The Good, The Bad, and the Absolutely Hideous

Discussion in 'Institute of Medicine (IOM) Government Contract' started by Nielk, Feb 16, 2015.

  1. Nielk

    Nielk

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    Blog by Erica Verillo

    http://cfstreatment.blogspot.com/2015/02/the-iom-report-good-bad-and-absolutely.html#comment-form

    excerpts-
    It is worthwhile to read in full!
     
    Mij, SDSue, CantThink and 3 others like this.
  2. Snowdrop

    Snowdrop Rebel without a biscuit

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    After explaining why she does not like the new name (SEID) she suggests calling this illness 'Ramsay's Disease'.
    As I've been reading about the IoM report I've started thinking about the name.
    I have always used ME. However, I find this name to be difficult for people to remember.
    I am fully behind calling it Ramsay's Disease. When people hear Parkinson's, Alzheimer's, Huntington's etc they don't always know precisely what the symptoms are but they know they are real and serious illnesses.

    When there is more and better research that would be the time to choose the scientific name for this illness along with subtype nomenclature. Until then I think saying I have Ramsay's or even Ramsay's/ME works for me.
     
    Mij, CantThink and Tammy like this.

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