there is this from 2010:
http://carersfight.blogspot.co.uk/2010/03/16-good-reasons-to-be-very-suspicious.html
"It is noteworthy that Action for ME, a charity that was set up by ME sufferer Sue Findley as a self help group for people with ME, has been so influential in supporting and working on a trial that assumes membership of a self help group to be a predictor of poor outcome of treatment ( Trial identifier, section 2.3)and with a trial whose investigators believe AfME's members to be mentally ill."
"Action for ME: the other main UK patients' charity, Action for ME (AfME), has had a chequered history. In September 1993 it changed its name and logo to "Action for ME and Chronic Fatigue". Complaints were made to the Charity Commission and the charity subsequently dropped "Chronic Fatigue". On 24th July 2003, in a statement approved by its Council of Management, the charity announced that it is funded by the Department of Health."
"In March 2001 AfME produced an excellent report, Severely Neglected: M.E. in the UK. This report was the result of a membership survey of 2,338 respondents, making it the biggest survey ever done on ME in the UK. Its confidential Preliminary Report of 28th February 2001 stated: "graded exercise was reported to be the treatment that had made most people worse" but in the published version, this was changed to reporting that graded exercise made 50% of respondents worse. This makes it all the more surprising that AfME "is working closely with Wessely and his colleagues on research initiatives funded by the MRC and the NHS" when those "initiatives" are based on graded exercise."
"
The M.E. community are not the instigators of politicised conflict, the Wessely-School are. These people are not open to reason, they are the enemy of good science and they are the enemy of M.E. sufferers."