The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
Discuss the article on the Forums.

The Hard Reality of Living with M.E. aka Chronic Fatigue Syndrome

Discussion in 'General ME/CFS News' started by Kyla, Jun 4, 2015.

  1. Kyla

    Kyla ᴀɴɴɪᴇ ɢꜱᴀᴍᴩᴇʟ

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    http://www.vice.com/en_uk/read/this-is-the-reality-of-living-with-me-162

    Wow. This is surprisingly great. It's interesting to see which news outlets are printing this sort of article.

    Remainder of the article here:
    http://www.vice.com/en_uk/read/this-is-the-reality-of-living-with-me-162
     
    Last edited: Jun 4, 2015
  2. Sasha

    Sasha Fine, thank you

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    Very well written indeed. Very moving.
     
    Kyla likes this.
  3. Antares in NYC

    Antares in NYC Senior Member

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    Great testimonial. :thumbsup: Painfully real, but great for Vice to publish this.
     
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  4. worldbackwards

    worldbackwards A unique snowflake

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    The odd scientific leap aside, I thought it was great. Really interesting that someone should publish such a real article, rather than the usual equivocations or "hearts and flowers" stuff.

    Noticed one charmer in the comments. Does anyone get their hair cut in North London? You know where not to go.
     
    heapsreal, ahimsa, Kyla and 2 others like this.
  5. L'engle

    L'engle moogle

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    Very good article. I have to say though as a Canadian, the Canadian consensus criteria is not widely used here by day to day GPs and disbelief of patients is still the default. The political situation isn't as bad as in the UK but it is still very much an under treated illness in Canada.
     
    Valentijn, halcyon, Bob and 2 others like this.
  6. Kyla

    Kyla ᴀɴɴɪᴇ ɢꜱᴀᴍᴩᴇʟ

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    I agree with you completely, but It seems to be a common misconception based on the fact that the CCC was commissioned here and the title includes the word "Canadian" :)

    Still, as far as this sort of article goes it avoided most if not all of the usual cringe-inducing misconceptions.
     
    heapsreal, Valentijn, SOC and 2 others like this.
  7. angee111

    angee111

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    Extremely heart wrenching how accurately it portrays the ignorance and neglect ME/CFS patients experience from the medical profession and family/friends alike. At our most vulnerable, we are essentially left out in the cold left to fend for ourselves /:
     
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  8. Valentijn

    Valentijn Senior Member

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    It can be a useful misconception for the general public, if it suggests that other governments are rejecting the BPS model so completely.
     
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  9. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    Good article and a well placed F word befor CBT.
    Helps get the message across about psychobabbler treatment .

    Those first 2 paragraphs ring a bell with me both ways. Im sure my mum had ME and always remember her in bed and never new her healthy. She has since passed away but other siblings still mention mum as depressed??

    The other was is my relationship with my kids. They saw me lying in bed alot and coming home from work wrecked. As being a parent with ME it feels like a failing that you cant do what you wanted to do with them. I had a very different view of myself as the way i wanted to be of a dad pre cfs .

    Cheers
     
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  10. Chris from Tampa

    Chris from Tampa

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    Great article. Thank you very much for posting it.
     
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