Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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The Good moments / Bad moments

Discussion in 'General Symptoms' started by VillageLife, May 25, 2010.

  1. VillageLife

    VillageLife Senior Member

    United Kingdom
    The strangest thing I think about this illness is the fact you can have the good times and bad times.
    overall my health is bad and I am disabled.
    But there are moments when I'm so very poorly and think oh my godness im going to die.
    but there are also moments when I think oh my goodness I don't feel as bad right now!

    This is a very confusing part of this illness and is perhaps why other people find it so hard to understand.

    Eg: Sometimes I cant get out the car to make it just a few steps to the beach but then another time I will be able to do it.
    or, Some days I can just about struggle around my village shop and pay for something, another time I can't tolerate even going in the door of the shop.
    Sometimes just sitting in the car and going for a drive is to much, other times its ok.

    I guess this is the nature of this illness, how do you all cope with the change from good to bad to good and so on...?

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