The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
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The final P2P report has been published by NIH

Discussion in 'General ME/CFS News' started by Nielk, Jun 16, 2015.

  1. Nielk

    Nielk

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  2. Dolphin

    Dolphin Senior Member

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  3. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    I see nothing about increasing funding, just talk of making better use of funding sources that already exist. OK...
     
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  4. Denise

    Denise Senior Member

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    This work is underway.
    (Also working on comparing the final report on the NIH site to the Annals paper.)
     
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  5. Denise

    Denise Senior Member

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    I compared the paper in Annals and the final report .

    There appear to be few substantive differences between them.

    Another advocate has pointed out that on page 2 of the final report, the first line says "ME/CFS results in major disability for a large proportion of the people affected." (The draft report uses the same phrase.)

    In Annals that same line (first paragraph of body of article) says "It results in major disability for many persons."

    I wonder if the following may have been suggestions from the editors at Annals rather than the authors of the report.
    Every instance of the word "Thus" in the final report is changed to "Therefore" in the Annals article.
    "e.g." is used in the final report but replaced in Annals with "such as".
    "comorbidities" is used in the final report, but replaced in Annals with "comorbid conditions".
    The final report uses the phrase "health care utilization" whereas Annals refers to "health care use".
    The Annals article tends to use the phrase "patients with ME/CFS" whereas the final report refers to ME/CFS patients.
    The final report uses "fail" or "failure" in 6 places, the Annals article uses "failure" in once place.

    EDITED TO ADD: While this comparison is not exhaustive, the differences between the two documents make me wonder how much of the differences are style/format edits suggested by Annals.

    Thoughts?
     
    Last edited: Jun 19, 2015
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  6. Nielk

    Nielk

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    Thank you @Denise for this tedious work! Do you know if anyone is working on comparing the draft report to the final report?
     
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  7. Denise

    Denise Senior Member

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    Thanks @Nielk.

    I believe that the draft to final report comparison is being done but a detailed write-up may take a while.
     
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  8. Nielk

    Nielk

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    It's a huge undertaking. Thank you.
     
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  9. Mark

    Mark Former CEO

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    If you can get the two documents into text format, you could run something like windiff or examdiff to highlight the differences between the documents side-by-side. Whoever's doing this, I hope they're using a tool like that.
     
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  10. SOC

    SOC

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    Having been the victim of technical editors many times (Just teasing, they generally do a great job ;)), I can comfortably say that those changes look exactly like style/format edits. I doubt there's any technical meaning behind those changes.
     
    Last edited: Jun 20, 2015
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  11. Denise

    Denise Senior Member

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  12. Nielk

    Nielk

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  13. Nielk

    Nielk

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  14. Sasha

    Sasha Fine, thank you

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